Annual Reports


The National Birth Defects Prevention Network publishes its annual report in a special issue of Birth Defects Research Part A.  The annual report includes directory information for birth defects programs, state-specific data on 45 selected birth defects, and journal articles on birth defects surveillance and epidemiology.
Annual report articles are listed in the Articles of Potential Interest database and can be searched by author name, keywords, title, year, etc. here.

A complete listing of previously published annual reports is available in the Members-Only Section.

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2017 Annual Report
2016 Annual Report
2015 Annual Report
2014 Annual Report
 
 2017 Annual Report
Special Issue: 2017 Congenital Malformations Surveillance Report:
A Report from the National Birth Defects Prevention Network


November 1, 2017
Volume 109, Issue 18

Pages 1401-1514
Issue edited by: Dr. Russell Kirby, Dr. Marilyn L. Browne

Editorial: Population-based birth defects surveillance: Challenges, opportunities, and recent developments (pages 1405–1406)
Russell S. Kirby and Marilyn L. Browne

Editorial: Editorial In Bed with The Devil: Recognizing Human Teratogenic Exposures (pages 1407–1413)
Jan M. Friedman

Using State Birth Defects Registries to Evaluate Regional Critical Congenital Heart Disease Newborn Screening (pages 1414–1422)
Amy Peterson Case, Stephanie D. Miller and Monica R. McClain

Utility of Capture-Recapture Methodology to Estimate Prevalence of Congenital Heart Defects Among Adolescents in 11 New York State Counties: 2008 to 2010 (pages 1423–1429)
Tugba Akkaya-Hocagil, Wan-Hsiang Hsu, Kristin Sommerhalter, Claire McGarry and Alissa Van Zutphen

Alternatives to Autopsy for Fetal and Early Neonatal (Perinatal) Deaths: Insights from the Wisconsin Stillbirth Service Program (pages 1430–1441)
Elspeth McPherson, Eirini Nestoridi, Dominique Heinke, Drucilla J. Roberts, Ruth Fretts, Mahsa M. Yazdy and Angela E. Lin
 
Prevalence trends of selected major birth defects: A multi-state population-based retrospective study, United States, 1999 to 2007 (pages 1442–1450)
Amanda M. St. Louis, Keewan Kim, Marilyn L. Browne, Gang Liu, Rebecca F. Liberman, Wendy N. Nembhard, Mark A. Canfield, Glenn Copeland, Jane Fornoff, Russell S. Kirby and for the The National Birth Defects Prevention Network
 
Epidemiology and Prognosis of Congenital Diaphragmatic Hernia: A Population-Based Cohort Study in Utah (pages 1451–1459)
Hari Shanmugam, Luca Brunelli, Lorenzo D. Botto, Sergey Krikov and Marcia L. Feldkamp
 
Maternal Medicaid Recipient Status and Congenital Malformations among New York State Live Births in 2010 (pages 1460–1470)
Sandra D. Richardson and Raina E. Josberger
 
Thyroid Medication Use and Birth Defects in the National Birth Defects Prevention Study (pages 1471–1481)
Meredith M. Howley, Sarah C. Fisher, Alissa R. Van Zutphen, Dorothy K. Waller, Suzan L. Carmichael, Marilyn L. Browne and The National Birth Defects Prevention Study
 
Population-based case–control study of the association between weather-related extreme heat events and neural tube defects (pages 1482–1493)
Aida Soim, Shao Lin, Scott C. Sheridan, Syni-An Hwang, Wan-Hsiang Hsu, Thomas J. Luben, Gary M. Shaw, Marcia L. Feldkamp, Paul A. Romitti, Jennita Reefhuis, Peter H. Langlois, Marilyn L. Browne and The National Birth Defects Prevention Study
 
Proximity to Pediatric Cardiac Surgical Care among Adolescents with Congenital Heart Defects in 11 New York Counties (pages 1494–1503)
Kristin M. Sommerhalter, Tabassum Z. Insaf, Tugba Akkaya-Hocagil, Claire E. McGarry, Sherry L. Farr, Karrie F. Downing, George K. Lui, Ali N. Zaidi and Alissa R. Van Zutphen
 
Brief Report: Population-based birth defects data in the United States, 2010–2014: A focus on gastrointestinal defects (pages 1504–1514)
Philip J. Lupo, Jennifer L. Isenburg, Jason L. Salemi, Cara T. Mai, Rebecca F. Liberman, Mark A. Canfield, Glenn Copeland, Sarah Haight, Sanjiv Harpavat, Adrienne T. Hoyt, Cynthia A. Moore, Wendy N. Nembhard, Hoang N. Nguyen, Rachel E. Rutkowski, Amy Steele, C.J. Alverson, Erin B. Stallings, Russell S. Kirby and and The National Birth Defects Prevention Network

PDF copy of the Birth Defects Data and Directory 

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 2016 Annual Report
Special Issue: 2016 Congenital Malformations Surveillance Report:
A Report from the National Birth Defects Prevention Network


November 2016
Volume 106, Issue 11

Pages 863-988
Issue edited by: Dr. Russell Kirby, Dr. Marilyn L. Browne

Editorial: Editorial advances in population-based birth defects surveillance, epidemiology, and public health practice (pages 867–868)
Russell S. Kirby and Marilyn L. Browne

Editorial: Editorial brain malformation surveillance in the Zika era (pages 869–874)
Edwin Trevathan

Using state and provincial surveillance programs to reduce risk of recurrence of neural tube defects in the United States and Canada: A missed opportunity? (pages 875–880)
Timothy J. Flood, Chelsea M. Rienks, Alina L. Flores, Cara T. Mai, Barbara K. Frohnert, Rachel E. Rutkowski, Jane A. Evans and Russell S. Kirby

Geographic distribution of live births with tetralogy of Fallot in North Carolina 2003 to 2012 (pages 881–887)
Jennifer S. Nelson, Rebecca C. Stebbins, Paula D. Strassle and Robert E. Meyer

Surveillance of ventricular septal defects in Delaware (pages 888–893)
Amy Acheson, Anika Vaidy, Kathleen Stomieroski, Dana R. Thompson, Kristin M. Maiden, Deborah B. Ehrenthal, Samir Yezdani, Abdul Majeed Bhat, Robert Locke and Louis E. BartosheskyScheuerle

Evaluation of the Western Australian Register of Developmental Anomalies: Thirty-five years of surveillance (pages 894–904)
Wendy N. Nembhard and Carol Bower

ICD-10–based expanded code set for use in cleft lip/palate research and surveillance (pages 905–914)
Alexander C. Allori, Janet D. Cragan, Cynthia H. Cassell and Jeffrey R. Marcus

Characterizing facial features in individuals with craniofacial microsomia: A systematic approach for clinical research (pages 915–926)
Carrie L. Heike, Erin Wallace, Matthew L. Speltz, Babette Siebold, Martha M. Werler, Anne V. Hing, Craig B. Birgfeld, Brent R. Collett, Brian G. Leroux and Daniela V. Luquetti

Using insurance claims data to identify and estimate critical periods in pregnancy: An application to antidepressants (pages 927–934)
Elizabeth C. Ailes, Regina M. Simeone, April L. Dawson, Emily E. Petersen and Suzanne M. Gilboa

Brief Report: Birth defects and neonatal morbidity caused by teratogen exposure after the embryonic period (pages 935–939)
Angela E. Scheuerle and Arthur S. Aylsworth

Association between antibiotic use among pregnant women with urinary tract infections in the first trimester and birth defects, National Birth Defects Prevention Study 1997 to 2011 (pages 940–949)
Elizabeth C. Ailes, Suzanne M. Gilboa, Simerpal K. Gill, Cheryl S. Broussard, Krista S. Crider, Robert J. Berry, Tonia C. Carter, Charlotte A. Hobbs, Julia D. Interrante, Jennita Reefhuis and and The National Birth Defects Prevention Study

Maternal autoimmune disease and birth defects in the National Birth Defects Prevention Study (pages 950–962)
Meredith M. Howley, Marilyn L. Browne, Alissa R. Van Zutphen, Sandra D. Richardson, Sarah J. Blossom, Cheryl S. Broussard, Suzan L. Carmichael, Charlotte M. Druschel and for the National Birth Defects Prevention Study

Paternal and joint parental occupational pesticide exposure and spina bifida in the National Birth Defects Prevention Study, 1997 to 2002 (pages 963–971)
Stacy M. Pettigrew, Erin M. Bell, Alissa R. Van Zutphen, Carissa M. Rocheleau, Gary M. Shaw, Paul A. Romitti, Andrew Olshan, Philip J. Lupo, Aida Soim, Jennifer A. Makelarski, Adrian M. Michalski, Wayne Sanderson and and the National Birth Defects Prevention Study

Population-based microcephaly surveillance in the United States, 2009 to 2013: An analysis of potential sources of variation (pages 972–982)
Janet D. Cragan, Jennifer L. Isenburg, Samantha E. Parker, C.J. Alverson, Robert E. Meyer, Erin B. Stallings, Russell S. Kirby, Philip J. Lupo, Jennifer S. Liu, Amanda Seagroves, Mary K. Ethen, Sook Ja Cho, MaryAnn Evans, Rebecca F. Liberman, Jane Fornoff, Marilyn L. Browne, Rachel E. Rutkowski, Amy E. Nance, Marlene Anderka, Deborah J. Fox, Amy Steele, Glenn Copeland, Paul A. Romitti, Cara T. Mai and for the National Birth Defects Prevention Network

A quality assessment of reporting sources for microcephaly in Utah, 2003 to 2013 (pages 983–988)
Amy Steele, Jane Johnson, Amy Nance, Robert Satterfield, C.J. Alverson and Cara Mai

PDF copy of the Birth Defects Data and Directory 

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 2015 Annual Report

 
Special Issue: 2015 Congenital Malformations Surveillance Report:
A Report from the National Birth Defects Prevention Network


November 2015
Volume 103, Issue 11

Pages I-V,893-993
Issue edited by: Dr. Russell Kirby, Dr. Marilyn L. Browne

Editorial: Population-based birth defects surveillance data: The cornerstone of epidemiologic and health services research and disease prevention (pages 893 - 894)
Russell S. Kirby and Marilyn L. Browne

Editorial: Editorial utility of population-based birth defects surveillance for monitoring the health of infants and as a foundation for etiologic research (pages 895 - 898)
Cynthia A. Moore and Edward R.B. McCabe

Issues involved in the phenotypic classification of orofacial clefts ascertained through a state birth defects registry for the North Carolina cleft outcomes study (pages 899 - 903)
Arthur S. Aylsworth, Alexander C. Allori, Luiz A. Pimenta, Jeffrey R. Marcus, Katherine G. Harmsen, Stephanie E. Watkins, Barry L. Ramsey, Ronald P. Strauss and Robert E. Meyer

Interpregnancy interval and birth defects  (904 - 912)
Adel Mburia-Mwalili and Wei Yang

Descriptive epidemiology of birth defects thought to arise by new mutation (pages 913 - 927)
Peter H. Langlois and Angela E. Scheuerle

Time trends in prevalence of gastroschisis in Texas, 1999 to 2011: Subgroup analyses by maternal and infant characteristics (pages 928 - 940)
Loc-Uyen T. Vo and Peter H. Langlois

Racial disparities in heterotaxy syndrome (pages 941 - 950)
Keila N. Lopez, Lisa K. Marengo, Mark A. Canfield, John W. Belmont and Heather A. Dickerson

Maternal asthma medication use during pregnancy and risk of congenital heart defects (pages 951 - 961)
Alissa R. Van Zutphen, Erin M. Bell, Marilyn L. Browne, Shao Lin, Angela E. Lin, Charlotte M. Druschel and for the National Birth Defects Prevention Study

Evaluating cost and resource use associated with pulse oximetry screening for critical congenital heart disease: Empiric estimates and sources of variation  (pages 962 - 971)
Matthew R. Reeder, Jaewhan Kim, Amy Nance, Sergey Krikov, Marcia L. Feldkamp, Harper Randall and Lorenzo D. Botto

Brief Report: Population-based birth defects data in the United States, 2008 to 2012: Presentation of state-specific data and descriptive brief on variability of prevalence  (pages 972 - 993)
Cara T. Mai, Jennifer Isenburg, Peter H. Langlois, CJ Alverson, Suzanne M. Gilboa, Russel Rickard, Mark A. Canfield, Suzanne B. Anjohrin, Philip J. Lupo, Deanna R. Jackson, Erin B. Stallings, Angela E. Scheuerle, Russell S. Kirby and for the National Birth Defects Prevention Network

PDF copy of the Birth Defects Data and Directory 

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2014 Annual Report  
Special Issue: 2014 Congenital Malformations Surveillance Report
A Report from the National Birth Defects Prevention Network



November 2014
Volume 100 , Issue 11

Pages 813-904
Issue edited by: Russell S. Kirby, Marilyn L. Browne

Editorial: Applications of birth defects surveillance in epidemiology, health services research, and disease prevention (pages 813–814)
Russell S. Kirby and Marilyn L. Browne

Editorial: Leveraging birth defects surveillance data for health services research (pages 815–821)
Cynthia H. Cassell, Scott D. Grosse and Russell S. Kirby

Brief Report: Prevention of orofacial clefts caused by smoking: Implications of the Surgeon General's report (pages 822–825)
Margaret A. Honein, Owen Devine, Scott D. Grosse and Jennita Reefhuis
 
Hospitalizations and associated costs in a population-based study of children with down syndrome born in Florida (pages 826–836)
April L. Dawson, Cynthia H. Cassell, Matthew E. Oster, Richard S. Olney, Jean Paul Tanner, Russell S. Kirby, Jane Correia and Scott D. Grosse
 
Barriers to care for children with orofacial clefts in North Carolina (pages 837–847)
Cynthia H. Cassell, Paula Strassle, Dara D. Mendez, Kyung A. Lee, Anne Krohmer, Robert E. Meyer and Ronald P. Strauss
 
Brief Report: Pregnancy outcome in women assigned an ICD-9/ICD-9-CM 655.0 code “central nervous system malformation in fetus affecting management of pregnancy”: Can these codes aid in surveillance for central nervous system defects? (pages 848–851)
Jane A Evans
 
Sociodemographic and hispanic acculturation factors and isolated anotia/microtia (pages 852–862)
Adrienne T. Hoyt, Mark A. Canfield, Gary M. Shaw, Dorothy K. Waller, Kara N.D. Polen, Tunu Ramadhani, Marlene T. Anderka, Angela E. Scheuerle and the National Birth Defects Prevention Study
 
Maternal periconceptional alcohol consumption and congenital limb deficiencies (pages 863–876)
Kristin M. Caspers Conway, Paul A. Romitti, Lewis Holmes, Richard S. Olney, Sandra D. Richardson and the National Birth Defects Prevention Study
 
Maternal periconceptional occupational pesticide exposure and neural tube defects (pages 877–886)
Jennifer A. Makelarski, Paul A. Romitti, Carissa M. Rocheleau, Trudy L. Burns, Patricia A. Stewart, Martha A. Waters, Christina C. Lawson, Erin M. Bell, Shao Lin, Gary M. Shaw, Richard S. Olney and the National Birth Defects Prevention Study
 
Geographic analysis of individual and environmental risk factors for hypospadias births (pages 887–894)
Jennifer J. Winston, Robert E. Meyer and Michael E. Emch
 
Brief Report: Birth defects data from population-based birth defects surveillance programs in the United States, 2007 to 2011: Highlighting orofacial clefts (pages 895–904)
Cara T. Mai, Cynthia H. Cassell, Robert E. Meyer, Jennifer Isenburg, Mark A. Canfield, Russel Rickard, Richard S. Olney, Erin B. Stallings, Meredith Beck, S. Shahrukh Hashmi, Sook Ja Cho, Russell S. Kirby and for the National Birth Defects Prevention Network
 
PDF copy of the Birth Defects Data and Directory 

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