| |
NBDPN 2007: Advances
and Opportunities for Birth Defects Surveillance, Research, and
Prevention
AGENDA:
Monday, February
5, 2007
| 8:00–8:30AM |
Opening Session
NBDPN
Russell Kirby (AL), Carol Stanton (CO), Phil Cross (NY)
NCBDDD, CDC
Alison Johnson (GA)
March of Dimes
Melanie Lockhart (DC) |
| 8:30-9:45AM |
Cost of Birth Defects: 2005 Update
|
Norman Waitzman (UT) |
| |
Economic and Psychosocial Impacts of Birth
Defects: Beyond
Direct Costs of Care
|
Scott Grosse (GA) |
| 9:45-10:00AM |
Break |
|
| 10:00AM-12:00PM |
Findings and Future of the National Birth
Defects Prevention Study
Moderator: Peggy Honein (GA)
Overview of the NBDPS and Update on Current Research Agenda
Jennita Reefhuis (GA)
Anti-hypertensive Medications and Congenital Heart Defects
Alissa Caton (NY)
Genitourinary Infections and the Risk of Gastroschisis
Marcia Feldkamp (UT)
Maternal Corticosteroid Use and Risk of Orofacial Clefts
Suzan Carmichael (CA)
Spectrum of Birth Defects Associated with Maternal Diabetes
Suzanne Gilboa (CDC) |
|
| 12:00PM-1:30PM |
Lunch |
| 1:30–3:00PM |
Concurrent Breakout Session
A
1) Birth Defects Surveillance: User-Friendly Spatial Analysis
Techniques
Moderator: Craig Mason (ME)
Speakers: Russell Kirby (AL), Matt Strickland (GA)
2) Moving from guidelines to standards: A panel discussion
Moderator: Brad McDowell (IA)
Framework and background on core standards
Brad McDowell (IA)
Panel discussion to discuss standards and include audience
participation
Lowell Sever (WA), Norma Ryan (OH), Myron Falken (MN), Linda
Jackson (AR), Brad McDowell (IA)
3) A Primer on Medical Procedures
Moderator: Barbara Warmerdam (CA)
Speaker : Angela Scheuerle (TX, Presentation  ) |
| 3:00–3:30PM |
Break |
| 3:30–5:00PM |
Concurrent
Breakout Session B
1)Prenatal Diagnosis Surveillance Methods
Moderator: Russell Kirby (AL)
Prenatal tests/procedures, the accuracy at specific
gestational ages for specific renal or other defects-
Jan Byrne (UT)
Methods, criteria, reporting prenatal diagnostic data
Linda Jackson (AR), Diana Valencia (PR, Presentation )
SGSC Chapter on Prenatal Diagnosis
Janet Cragan (CDC, Presentation )
2) Working with Family Organizations/Networks Collaboration
with Families and External Partners
Moderator: Allison James (AZ)
Speakers: Dana Anderson (TX), Laura J. Warren (TX), Nora A.
Oyler (TX), Ann Andes (TX)
3) Monitoring for Changes in Birth Defects Prevalence
Moderator: Peter Langlois (TX)
Speakers: Adolfo Correa (GA), Phil Cross (NY, Presentation
), Russel
Rickard
(CO) |
| 5:00-6:00PM |
New Member Reception
and Network |
| 6:30 |
Alamo
Tour |
Tuesday, February 6, 2007
| 8:00AM–9:30AM |
Plenary
Session: |
| Clinical History of Congenital Heart Defects
(CHD): From Abstraction to Adulthood |
Angela Lin (MA) |
| Embryology of the Heart and Associated Malformations |
Thomas Sadler (MT) |
| Overview of CHD, including anatomy |
William Mahle (GA) |
| Risk Factors for CHD |
Charlotte Hobbs (AR, Presentation ) |
| 9:45AM-10:00AM |
Break |
| 10:00AM-12:00PM |
Plenary Session on CHD continues:
Prenatal Diagnosis
Jan Byrne (UT)
Outcomes in Children and Adults with Congenital Heart Disease
William Mahle (GA)
Family/Individual Perspectives
Sheryleen Grothus (TX) and Wesley Ledoux (TX) |
| 12:00PM-1:30PM |
Lunch |
| 12:30PM-1:30PM |
Ethical,
Legal, and Social Issues (ELSI) Committee meeting) |
| 1:30PM–3:00PM |
Concurrent
Breakout Session C
1) Birth Defects Programs and Local Agencies: Interactions and Collaborations
Moderator: Samara Viner-Brown (RI)
Speaker: Samara Viner-Brown (RI), Angela Ablorh-Odjidja (DC)
2) Folic Acid: New Strategies for Increasing Consumption
Moderator: Joe Mulinare (GA)
Research & Policy: Tackling the NTD Disparity Among Latinas
Alina Flores (GA)
Message segmentation for Hispanics and beyond: The application of social
marketing to a folic acid campaign
Amy Mullenix (NC, Presentation )
Multivitamin Distribution: Legislation, Logistics, and Lessons Learned
Judy Major (NC)
Folic Acid—What do Health Care Providers Know and How do They Communicate
to Patients
Steve Abelman (MOD)
3) Impact of Disasters on Birth Defects Surveillance
Moderator: Sonja Rasmussen (GA)
Speakers: Sonja Rasmussen (GA), Robert Meyer (NC), Hyrum
Kanady (TX), Kay Webster (LA) |
| 3:30PM-5:00PM |
Concurrent
Breakout Session D
1) The Heart Surveillance: Tips on Coding
Speakers: Angela Lin (MA), Tiffany Riehle (GA)
2) Collaborative Research Projects
Moderator: David Law (TN) |
Wednesday, February 7, 2007
| 8:00–9:30AM |
Concurrent
Breakout Session E
1) Syndromes associated with Congenital Heart Defects
Moderator: Zenaida Steinhauer (NJ)
Speaker: Angela Lin (MA) and Tiffany Riehle (CDC)
2) Heath Services Utilization for Children with Craniofacial
Malformations: Linkages with BD Surveillance Systems
Moderator: Scott Grosse (CDC)
Health Services Utilization among children with Clefts in NC
Cynthia Cassell (NC)
Children with Orofacial Clefts in MA: Hospital Utilization &
Associated Costs
Marlene Anderka (MA)
Quality of Life and Craniofacial Anomalies: Initial Focus Group
Results, Utah, 2006
Mary Bishop-Stone (UT)
3) Expanding the NBDPN Surveillance Guidelines: Data
Presentation
Moderator: Amy Case (TX)
Speakers: Amy Case (TX), Lowell Sever (WA) |
|
| 9:30AM–10:00AM |
Break |
|
| 10:00AM–11:00AM |
Implementing
the NBDPN Strategic Plan: Key Issues for the
Network
Moderator: Phil Cross (NY) |
|
| 11:00AM-12:00PM |
Preterm Birth and Birth Defects:
Overlapping Outcomes with
Implications for Applied Genomic Research and Prevention
Moderator: Russell Kirby (AL)
Speaker: Siobhan Dolan (NY) |
| 12:00PM-1:30PM |
NBDPN Lunch (box lunch provided
for all registrants)
Luncheon Speaker: Annie Osborn, MD with Treacher Collins
Syndrome |
| 1:30PM-3:30PM |
Closing
Plenary Session
Are amphibians canaries? What frogs may be telling us about
pesticides and birth defects.
Moderator: Lowell Sever (WA)
Speaker: Tyrone Hayes (CA) |
|
| 3:30PM |
Adjourn
meeting
Complete conference evaluation |
|
| |
|
|
|
|
