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NBDPN 2005: Advances and Opportunities for Birth Defects Surveillance, Research, and Prevention 

Presentation and Poster Abstracts

AGENDA:

Monday, January 24, 2005
8:00–9:00AM Opening Session
NBDPN Collaborative Projects, National Center on Birth Defects and Developmental Disabilities, Update on Birth Defects Surveillance Activities
9:00AM–12:00PM Birth Defects: From Genetics to Genomics and Beyond
Moderator John Meaney (AZ)
  Genetic Causes of Birth Defects Christopher Cunniff (AZ)
  Genetic Epidemiology of Birth Defects Laura E. Mitchell (TX)
  The Adevent of Genomic Medicine: Defining the Balnace of Risk and Benefits in the Era of Genomics Jeff Trent (AZ)
12:00–1:30PM Lunch
1:30–3:30PM Concurrent Breakout Sessions
1) Record Linkage for Birth Defects Surveillance Data: What Works, and How?
Moderator: Philip Cross (NY)
Record Linage: What, How and Why, and So What?
Russell Kirby (AL)
2) Chromosomes and Chromosome Coding
Angela Scheuerle (TX)
3) Using Formative Research on Optimal Nutrition to Understand the Complexity of Folic Acid Use Among Women of Childbearing Age
Moderator: Joe Mulinare (GA)
Speakers: Lisa Lindsey and Heather Carter (GA)
3:30–4:00PM Break
4:00–5:00PM Committee Meetings
Data Committee
Chair: Sam Viner-Brown (RI)
Education and Outreach Committee
Chair: Denise Higgins (MT)
5:00-6:00PM New Member Reception and Network
6:15-9:30PM NBDPN Dinner and Social Activity at Rustler's Rooste on South Mountain

Tuesday, January 25, 2005
9:30AM–9:30AM Plenary Session
Embryology Thomas Sadler (MT)
Genetics/Epidemiology Lorenzo Botto (CDC)
Coding and Classification Angela Lin (MA)
Prenatal Diagnosis Jan Byrne (UT)
12:00–1:30PM Lunch
1:30–3:00PM Concurrent Breakout Sessions
1) Epidemiological and Statistical Analysis
Moderator/Speaker: Carey Drews (GA)
2) GIS and Spatial Analysis
Moderator: Philip Cross (NY)
3) HIPAA
Moderator: Carol Stanton (CO)
3:00–3:30PM Break
3:30 – 4:30PM Partners/Affiliate NBDPN Members: ASTHO, AMCHP, OTIS, TFAH, MOD, Environmental Health Tracking, SBAA
Moderator: Russell Kirby (AL)
4:30–5:30PM Committee Meetings
Memberships and Elections Committee Meeting
Publications and Communications Committee Meeting

Friday, January 23, 2004
8:00–9:00AM Birth Defects Surveillance Standards and Guidelines Carol Stanton (CO)
9:00–9:45AM Nutritional Impact of Birth Defects Ron Munger (UT)
9:45–10:30AM Economic Impact of Birth Defects Norm Waitzman (UT)
10:30–11:00AM Break
11:00–12:00PM Educational Workshops (Workshops repeat again in the afternoon.)
  1) Syndromes associated with CHD Alan Rope (UT)
  2) CHD computer-based training curriculum Amy Case (TX)/
Angela Scheuerle (TX)
  3) Data management and report generation Leslie O’Leary (CDC)
  4) We’ve got the data… where do we go from here? April Montgomery (CO)/
Russell Kirby (AL)
  5) Targeting the folic acid message to Hispanics and health care providers Joe Mulinare/Chris Prue (CDC)
12:00-2:15PM Business Luncheon of NBPDN Members
Awards Ceremony
Remarks – Robert Meyer (NC) Past-President
2:15-3:30PM REPEAT Educational Workshops
  1) Syndromes associated with CHD Alan Rope (UT)
  2) CHD computer-based training curriculum Amy Case (TX)/
Angela Scheuerle (TX)
  3) Data management and report generation Leslie O’Leary (CDC)
  4) We’ve got the data… where do we go from here? April Montgomery (CO)/
Russell Kirby (AL)
  5) Targeting the folic acid message to Hispanics and health care providers Joe Mulinare/Chris Prue (CDC)
3:30PM Turn in evaluations
Adjourn meeting
 
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