Annual Meetings

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2015 Annual Meeting
2014 Annual Meeting
2013 Annual Meeting
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The National Birth Defects Prevention Network (NBDPN) held its 19th Annual Meeting using a virtual meeting format.  
Tuesday, June 7, 2016
  • Welcome - Russ Kirby (FL), Marlene Anderka (MA)
  • NBDPN Opportunities and Collaborations - HL7 and EHR, Multi-state Data Projects, NBDPN Zika and Birth Defects - Glenn Copeland (MI), Philip Lupo (TX), Marlene Anderka (MA)

  • Brain Abnormalities - Embryology, Clinical, Prenatal, Surveillance
    • Embryology and brain fetal development - Thomas Sadler (MT)
    • Clinical phenotype - Cindy Moore (CDC)
    • Prenatal diagnosis - Jan Byrne (UT)
    • Surveillance and epidemiology of brain abnormalities related to Zika virus - Jan Cragan (CDC)
Wednesday, June 8, 2016 - Pre-Recorded Sessions
  • Health Service Utilization and Outcomes - Scott Grosse (CDC), Jim Robbins (AR)
  • Data Visualization and Display - Jason Salemi (TX)
  • Additions to Your Analytic Toolbox: Rare Outcomes and Poisson Regression - Sarah Tinker (CDC), Peter Langlois (TX)
Wednesday, June 8, 2016 - Live Sessions
  • Interactive Q&A and discussion covering all pre-recorded analytic sessions - Scottt Grosse (CDC), Jason Salemi (TX), Peter Langlois (TX)
  • Birth defects surveillance standards - Marlene Anderka (MA), Jason Salemi (TX)
  • ICD-10-CM and Birth Defects Surveillance - Barbara Warmerdam (CA), Jan Cragan (CDC), Rebecca Liberman (MA)
2015 Annual Meeting

National Birth Defects Prevention Network 18th Annual Meeting
Advances and Opportunities for Birth Defects Surveillance, Research and Prevention
Key Bridge Marriott, Arlington, VA

Monday, October 19, 2015
  • Current MCH / Birth Defects Policy Environment - Cindy Pelligrini (MOD)

  • Electronic Health Information Exchange for Birth Defects Surveillance - Laura Rappleye (MI) and Glenn Copeland (MI)
  • Around the Network
  • National Standards Development for Birth Defects Surveillance - Marlene Anderka (MA)
  • Multi-state Data Collaborative Projects - Mark Canfield (TX)
  • NBDPN Strategic Planning Implementation and Birth Defects Surveillance - Jane Correia (FL)

  • ICD-10-CM Transition and Birth Defects Surveillance - Jan Cragan (CDC)
  • Critical Congenital Heart Defect Screening: Lessons Learned and Collaborations  Between Birth Defects and Newborn Screening Programs - Keri Urquhart (MI) and Joan Ehrhardt (MI)
  • Time Monitoring and Cluster Investigations - Peter Langlois (TX), Sara Khan (CDC),  Suzanne Gilboa (CDC)
  • Analytic Data Methods - Peter Langlois (TX), Russell Kirby (FL), Sarah Tinker (CDC)
  • Birth Defects Data Visualization and Utilization  -  Mark Canfield (TX)
  • Parents as Partners to Raise Awareness on the Impact of Birth Defects - Jodi Lemacks (VA), Mattew Murphy (TX)

Tuesday, October 20, 2015
  • Embryology and Fetal Development - Vaibhav Pai (MA)
  • Hemifacial Microsomia - Jan Bryne (UT)
  • Laterality Defects (Heterotaxy and Situs Inversus) - Matt Oster (CDC)
  • Common Defects and Rare Syndromes with Asymmetry - Kim Keppler-Noreuil (NIH)
  • Prenatal Imaging for Selected Conditions - Jan Bryne (UT)
  • Clinical Coding for Selected Birth Defects with Asymmetry- Angela Scheuerle (TX)                                       
  • National Birth Defects Prevention Study (NBDPS) Research Findings, part 1
  • NBDPN Standards Data Quality Tools –Data Quality Performance Measures - Marlene Anderka (MA)

  • Best Practices and Resources for Operating Birth Defects Surveillance Programs -  Barbara Warmerdam (CA), Ann Phelps (TX), and Carol Stanton (CO)
  • National Birth Defects Prevention Study (NBDPS) research findings, part 2 - Mark Canfield (TX)
  • Prevention Strategies to Improve Birth Outcomes / Prevent Birth Defects - Dianna Contreras (AZ) and Kara Polen (CDC)
Wednesday, October 21, 2015

  • National Collaborative Studies on Risk Factors for Birth Defects
  • Genetics and Gene Interactions from an Epidemiologic Perspective - Suzan Carmichael (CA)
  • Fetal Therapy for Birth Defects and Long-term Outcomes - Katherine Wenstrom (RI)

  • Perspective from a Parent/Individual with Birth Defects
2014 Annual Meeting

The National Birth Defects Prevention Network (NBDPN) held its 17th Annual Meeting using a virtual meeting format.  
Wednesday, February 26, 2014
Session 1 Agenda

2:00 PM - 2:10 PM     
  • Welcome & introduction to the virtual meeting series - Russell Kirby (FL)

2:10 PM - 2:25 PM    
  • Synergistic collaborations through NBDPN: the whole is greater than the sum of its parts - Paul Romitti (IA)

2:25 pm - 2:55 PM    
  • Standards for birth defects surveillance: implementation of data quality assessment - Marlene Anderka (MA)

2:55 PM - 3:25 PM    
  • Taking the next steps: population based birth defects programs continue to guide the way -          Jennita Reefhuis (CDC)

3:25 PM - 3:45 PM    
  • Opportunities and direction for birth defects surveillance, research and prevention - Margaret Honein (CDC)

3:50 PM - 4:20 PM    
  • Electronic health records: experience from a state birth defects program - Glenn Copeland (MI)

4:20 PM - 4:50 PM   
  • Insights from parents: NBDPN parent advisory group - Jodi Lemacks (VA) and Kayte Thomas (NC)

Wednesday, March 26, 2014 
Session 2 Agenda

2:00 PM - 2:05 PM    
  • Welcome and Introduction  - Paul Romitti (IA)

2:05 PM - 2:30 PM    
  • Back to the basics & current practice of population based birth defects surveillance in the United States - Paul Romitti (IA) and Cara Mai (CDC)

2:30 PM - 3:10 PM     
  • Practical experience from state programs: data collection, management, and utilization - Barbara Warmerdam (CA) and Jane Correia (FL)

3:10 PM - 3:35 PM    
  • Data quality for birth defects surveillance - Carol Stanton (CO)
3:40 PM - 4:40 PM    
  • Emerging issues impacting birth defects surveillance (ICD- 10 Implementation and Electronic  Data  Collection and Process) - Barbara Warmerdam (CA), Janet Cragan (CDC), Jane Correia  (FL),Diana Sampat (FL), Carol Stanton (CO)

Wednesday, April 23, 2014 
Session 3 Agenda

2:00 PM - 2:05 PM     
  • Welcome - Peter Langlois (TX)

2:05 PM - 2:30 PM   
  • Opportunities to enhance birth defects epidemiology and health services research with clinical and administrative data sources - Russell Kirby (FL) 

2:30 PM - 3:05 PM    
  • Hospital resource use and cost analyses using hospital discharge and Medicaid data - Elizabeth Radcliff (NC) and Cynthia Cassell (CDC)

3:05 PM - 3:30 PM    
  • Using death records to understand disparities and survival  - Wendy Nembhard (FL)

3:35 PM - 4:00 PM    
  • Early intervention enrollment analysis of birth defect cases  - Chris Borger (MA)

4:00 PM - 4:15 PM    
  • Exploring novel data linkages for birth defects registries - Mark Canfield (TX)

4:15 PM - 4:45 PM    
  • Discussion of data sources and uses - Peter Langlois (TX)

Wednesday, May 28, 2014
Session 4 Agenda

2:00 PM - 2:05 PM    
  • Welcome and Introduction - Richard Olney (CDC)

2:05 PM - 2:15 PM    
  • Godfrey P. Oakley Award

2:15 PM - 2:50 PM    
  • Dysmorphology approach to the newborn with multiple birth defects - Lorenzo Botto (UT)

2:50 PM - 3:40 PM    
  • Common congenital malformation associations - Angela Scheuerle (TX)

3:45 PM - 4:30 PM    
  • Embryology of multiple birth defects  - Thomas Sadler (MT)

4:30 PM - 5:00 PM    
  • Prenatal imaging of selected patterns - Jane Byrne (UT)


2013 Annual Meeting

2013 National Birth Defects Prevention Network (NBDPN) Annual Meeting Joint Meeting with the National Birth Defects Prevention Study (NBDPS)
February 25-27, 2013
Atlanta, Georgia

Monday, February 25, 2013


  • NBDPN – Russell Kirby (FL)
  • NBDPS - Paul Romitti (IA)
  • March of Dimes - Melanie Lockhart (MOD)
  • CDC Welcome - Coleen Boyle (CDC)


  • Electronic health records  
  • Moderator: Glenn Copeland (MI) Speakers: Jennifer Horowitz (MI), Shaun Grannis (IN), Sandy Jones (CDC)


  • Birth Defects Surveillance Standards  - Marlene Anderka (MA)
  • Multi-state Data Collaborations - Mark Canfield (TX)
  • Raising Birth Defects Awareness – Partnership with Parents - Marcia Feldkamp (UT) and NBDPN PAG


  • Standards for Birth Defects Surveillance: Assessment Tools-Moderator: Marlene Anderka (MA), Speakers: Wendy Sklenka (GA), Paula Rezutko-Custic (IL), Lynda Douglas (CDC)
  • Analytic Methods for Real-time and Retrospective Monitoring - Moderators: Russell Kirby (FL) and Russel Rickard (CO)Speakers: Peter Langlois (TX), Owen Devine (CDC)
  • Working with Electronic Medical Records: Finding the New Normal Moderator: Barbara Warmerdam (CA)
    (IA)Pual Romitti (UT), Marcia FeldkampSpeakers: Carol Stanton (CO), Mark Canfield (TX)


  • Critical Congenital Heart Defects Screening: Birth Defects and Newborn Screening Program Interactions Moderator: Richard Olney (CDC) Speakers: Richard Olney (CDC), Janice Bach (MI), Marcia Feldkamp (UT)
  • ICD10-CM Coding Updates. Moderator: Barbara Warmerdam (CA) Speakers: Donna Pickett (CDC), Janet Cragan (CDC)
  • Communication Strategies for Program Effectiveness. Moderator: Angela Colson (CDC) Speakers: Cara Mai (CDC), Angela Colson (CDC), Amy Nance (UT), Veronica Smith (AR)

Tuesday, February 26, 2013


  • Congenital Heart Defects (CHD) Moderator: Angela Lin (MA)
  • Heart Development: Early Patterning Portends the Quality of Pitter-patter - Thomas Sadler (UT)
    Lopez (TX)KeilaPublic Health Aspects of CHD -
  • CHD review, I:  The complex “early” defects (laterality defects, single ventricle, conotruncal) - Matt Oster (GA)


  • CHD review, II: “Everything else” (RV/LVOTO, ASD, VSD, TAPVC, PAPVC, PDA, Ebstein) - Matt Oster (GA)
  • Prenatal Testing and Ultrasonography - Jan Byrne (UT)



  • Show Your Love and Get Involved - Join to Learn More About a New National Preconception Health Social Marketing Campaign - Moderator: Elizabeth Mitchell (CDC), Samara Viner-Brown (RI)
  • NBDPS Research, Part 1 -  Moderator: Charlotte Druschel (NY)  Speakers: Charlotte Hobbs (AR), Suzan Carmichael (CA), Carissa Rocheleau (CDC), Marcia Feldkamp (UT), Amy Herring (NC), Adrienne T Hoyt (TX)
  • Common Syndromes Associated With Congenital Heart Defects - Angela Lin (MA) and Tiffany Colarusso (CDC) Coding Cardiac Defects - Angela Scheuerle (TX)


  • Enhancing Birth Defects Program Infrastructure to Examine Other Conditions, e.g. Rare disorders, Stillbirths
  • Moderator: Russell Kirby (FL) Speakers: Paul Romitti (IA), Ying Wang (NY)
  • Making the Data Talk: Analysis of Existing Databases for Health Services and Outcomes Research in Birth Defects. Moderator: Cynthia Cassell (CDC) Speakers: Mark A. Canfield (TX), Scott Grosse (CDC), Elizabeth Radcliff (NC), and Stephanie Watkins (NC)
  • NBDPS Research, Part 2 Moderator:  Marlene Anderka (MA) Speakers: Kim Waller (TX), Jeanette Stingone (NC), Elizabeth Ailes (CDC), Martha Werler (MA), Samantha Parker (MA), Marilyn Browne (NY)

Wednesday, February 27, 2013

9:00 AM-9:30 AM                      

  • Godfrey Oakley Award: Lifetime Achievement in Birth Defects

9:30 AM-10:00 AM                 

  • Future of the Centers for Birth Defects Research and Prevention (CBDRP) Jennita Reefhuis (CDC)


  • Medication Exposure in Pregnancy Risk Evaluation Program (MEPREP)- Moderator: Margaret Honein  (CDC) Speaker: Susan Andrade (MA)

12:00-12:30 PM                        

  • A Family Story: Chuck and Laura Lewis with their son Ryan

12:30 PM                                 

  • NBDPN/NBDPS Joint Conference Concludes