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2018 Annual Meeting
National Birth Defects Prevention Network 21st Annual Meeting
Advances and Opportunities for Birth Defects Surveillance, Research and Prevention
Buckhead Marriott Hotel and Conference Center, Atlanta, GA

Monday, March 12, 2018

8:00AM-8:30AM Welcome Opening Plenary Session
  • NBDPN – Jason Salemi (TX), Russell Kirby (FL)
  • March of Dimes – Katie Sellers (MOD) 
  • CDC – Coleen Boyle (CDC)
8:30AM-8:45AM Plenary Sessions
  • Decades of Birth Defects Surveillance and Research at CDC: Celebrating MACDP and NBDPS – Jennita Reefhuis (CDC)
  • Protecting Mothers and Babies from Emerging and Known Health Threats:  The Critical Role of Birth Defects Surveillance – Margaret (Peggy) Honein (CDC)
  • The Future of Birth Defects Surveillance: Real Time Clinical Information Messaging of Reportable Conditions – Glenn Copeland (MI)
10:15AM-12:00PM Plenary Session: Around the Network
  • Multi-state Data Collaborations – Philip Lupo (TX)
  • National Standards for Birth Defects Surveillance – Marlene Anderka (MA)
  • Birth Defects Surveillance Program Survey – Marlene Anderka (MA)
  • NBDPN Business Update – Amy Nance (UT)
  • NBDPN Strategic Plan Implementation – Jane Correia (FL)
  • NBDPN Awards – Peter Langlois (TX)
1:30PM–3:00P Concurrent Breakout Session A
  • A1. The Ins and Outs of Trend Analysis in Birth Defects Surveillance – CJ Alverson (CDC), Peter Langlois (TX),
  • Jason Salemi (TX)
  • A2. State Experiences in Accessing and Using Electronic Medical Data – Glenn Copeland (MI), Paul Romitti (IA),
  • Monica Clouse (KY), Meredith Howley (NY)
  • A3. Translating Birth Defects Surveillance Data and Prevention Messages into Actionable Digital Media Content – Jay Dempsey (CDC)
3:30PM-5:00PM Concurrent Breakout Session B
  • B1. Practical Applications of Spatial Analysis in Birth Defects Surveillance – Michael Kramer (GA),  Russell Kirby (FL)
  • B2. Data Quality Lifecycle for Collecting and Managing Birth Defects Surveillance Data – Mahsa Yazdy (MA), Terri Escobar (TX), Kimberlea Hauser (PA), Jason Salemi (TX) 
  • B3. Role of State Birth Defects Surveillance Programs in Service Referral, Gap Identification, and Evaluation – Cara Mai (CDC), Barbara Frohnert (MN), Jane Fornoff (IL), Robert Meyer (NC)

Tuesday, March 13, 2018

8:30AM-12:00PM Plenary Session: Disorders of Sex Development (DSD): Embryology, Etiology, Epidemiology
  • The Origin of Males and Females – Thomas Sadler (UT)
  • Sex Chromosome Abnormality Syndromes – Doris Fadoju (GA)
  • Prenatal Diagnosis: Disorders of Sex Development/Differences – Martina Badell (GA)
  • Ambiguous Genitalia – Management, Treatment, Clinical Issues from the Endocrine Perspective – Briana Patterson (GA)
  • The Experience of Disorders (or Differences) of Sex Development (DSD) – David Sandberg (MI)
1:30PM–3:00PM Concurrent Breakout Session C
  • C1. Coding Disorders of Sex Development – Angela Scheurele
  • C2. Critical Congenital Heart Defects: Screening, Monitoring, and Outcomes – Matthew Oster (CDC), Marci Sontag (CO), Amy Gaviglio (MN), Heather Pint (MN), Joan Ehrhardt (MI)
  • C3. Complexity of Birth Defects Diagnoses: Collection, Management, and Analysis (computerized case classification, diagnostic information storage, etc.) – Janet Cragan (CDC), Peter Langlois (TX),  Jason Salemi (TX)
3:30PM-5:00PM Concurrent Breakout Session D
  • D1. Research Updates from the Centers for Birth Defects Research and Prevention (CBDRP), National Birth Defects Prevention Study (NBDPS) – Jonathan Suhl (IA), Kari Weber (CA), Nina Forestieri (NC), Kayla Anderson (CDC), Meredith Howley (NY), Joseph Levy (AR), Dominique Heinke (MA)
  • D2. Implications of Coding Changes to Birth Defects Surveillance – Janet Cragan (CDC), Shawn Wells (UT), Barbara Warmerdam (CA), Carol Stanton (CO), Rebecca Liberman (MA)
  • D3. Sustaining Birth Defects Surveillance Through Leadership Transition and Other Major Shifts – Alina Flores (CDC), Mark Canfield (TX)

Wednesday, March 13, 2018

9:00AM-10:00AM Plenary Session
  • The Challenge of Substance-Exposed Newborns – Mark Hudak (FL)
10:15AM-11:15AM Plenary Session: Health Outcomes for Children Born with NAS and FASD
  • NAS Surveillance Study – Jane Fornoff (IL)
  • Educational Disabilities Among Children Born with Neonatal Abstinence Syndrome – Mary-Margaret Fill (TN)
  • FASD: Neurodevelopmental Outcomes and their Habilitative Care Needs – Julie Kable (GA)
11:15AM-11:50AM Inspirational Family Story
  • Family adopted a boy with FAS – Donnie Winokur and Quinn (service dog) 
2017 Annual Meeting
The scientific sessions from the 2017 NBDPN Virtual Annual Meeting are available for viewing as CEU enduring materials. If you have questions, please contact
The CEU course name is WC2871 - (Webcast) 2017 NBDPN Virtual Annual Meeting - Atlanta, GA - September 13-14, 2017. Participants must watch the sessions and evaluate them on TCEO online in order to receive CEs.  

Course Detail:
Course Link:
September 13, 2017
  September 14, 2017
1:30-3:30 PM ET PRE-RECORDED Sessions           8:00-3:00 PM ET PRE-RECORDED Sessions
1:00-1:30 PM ET
Welcome & NBDPN Current Issues and Events
Speaker: Peter Langlois
  8:00-9:00 AM ET

Uses of Spatial Analysis with Birth Defects Registry Data  
Speakers: Rusell Kirby, Eric Delmelle, Tabassum Insaf, Mahsa Yazdy
1:30-3:30 PM ET Congenital Infections and Related Birth Defects     9:00-10:00 AM ET

From Birth Defects Awareness to Improving Birth Outcomes: Tools and Applications for Birth Defects Prevention   
Speakers: Alina Flores, Amy Nance, Samara Viner-Brown
    1:30-1:45 PM ET
Introductions & Session Overview
Speaker: Peter Langlois
  10:30-11:30 PM ET
Top Ways to Improve Surveillance Data  
Speaker: Jason Salemi
    1:45-2:15 PM ET
Proving Causation: How Do We Prove That an Infectious Agent is a Teratogen?
Speaker: Sonja Rasmussen
  11:30-12:30 PM ET
The Art of Medical Record Abstraction  
Speaker: Janet Cragan
    2:15-3:00 PM ET
Congenital Abnormalities Resulting from Congenital Infections
Speaker: Cynthia Moore
  1:30-2:30 PM ET

Zika’s Impact on Population-Based Birth Defects Surveillance  
Speakers: Cara Mai, Julie Dunn, Jane Fornoff, Joan Ehrhardt
3:30-4:00 PM ET LIVE Q&A   3:00-4:00 PM ET LIVE Q&A and Wrap-up & Closing
3:30-4:00 PM ET
Interactive Q&A and discussion covering pre-recorded sessions
Host: Jennita Reefhuis
  3:00-3:45 PM ET
Interactive Q&A and discussion covering all pre-recorded sessions
Host: Jennita Reefhuis
      3:45-4:00 PM ET
Wrap-up & Closing
Speaker: Jason Salemi

PROGRAM DESCRIPTION: Seminars are designed to increase knowledge and change competency of current practices in birth defects surveillance and research to improve public health efforts to prevent birth defects. The 2017 NBDPN Virtual Meeting will cover topics in birth defects surveillance, research, and prevention to keep public health and medical professionals abreast of current issues affecting the field of birth defects. This new knowledge should aid them in understanding current national standards and guidelines for improving birth defects surveillance. Additionally, we will provide updates on risk factors for birth defects, specifically Zika virus and other congenital infections. This will be two day virtual meeting with a mix of pre-recoded and live sessions. We will have 18 speakers from organizations such as Centers of Disease Control and Prevention, University of Texas School of Public Health, Baylor College of Medicine, Boston University School of Public Health, Utah Department of Health.
OBJECTIVES: At the conclusion of the session, the participant will be able to:
  1. Describe at least two congenital infections that have been associated with congenital anomalies. 
  2. Identify at least two limitations in using maternal residential address on birth certificates as locations for exposure assessment in birth defects epidemiology. 
  3. Identify at least one specific strategy for engaging partners in birth defects awareness campaigns. 
  4. List at least two practical ways to improve birth defects surveillance data. 
  5. Define at least two necessary characteristics of high quality birth defects data abstraction. 
  6. Describe at least one challenge experienced by states performing Zika birth defects surveillance and at least one way that challenge can be overcome.
Martina Badell, MD
Emory University

Janet Cragan, MD, MPH
Centers for Disease Control and Prevention
Eric Delmelle, MA, MS, PhD
University of North Carolina at Charlotte
Julie Dunn, PhD
Massachusetts Department of Public Health
Joan Ehrhardt, MS, CGC
Michigan Department of Health and Human Services

Catherine Eppes, MD, MPH
Baylor College of Medicine
Alina Flores, DrPH, MPH, CHES
Centers for Disease Control and Prevention
Jane Fornoff, DPhil
Illinois Department of Public Health
Tabassum Insaf, MBBS, MPH, PhD
New York State Department of Health
Russell Kirby, PhD, MS, FACE
University of South Florida
Peter Langlois, PhD
Texas Department of State Health Services
Cara Mai, DrPH, MPH
Centers for Disease Control and Prevention
Cynthia Moore, MD, PhD
Centers for Disease Control and Prevention
Amy Nance, MPH
Utah Department of Health
Sonja Rasmussen, MD, MS
Centers for Disease Control and Prevention
Jason Salemi, PhD, MPH
Baylor College of Medicine
Samara Viner-Brown, MS
Rhode Island Department of Health
Mahsa Yazdy, PhD, MPH
Massachusetts Department of Public Health

ORIGINATION DATE: September 14, 2017
EXPIRATION DATE: October 16, 2017

Origination Date: October 17, 2017
Expiration Date: October 17, 2019

HARDWARE/SOFTWARE: Computer Hardware; Internet connection; Browser
TARGET AUDIENCE: Physicians, Registered Nurses, Administrators, DOs, Epidemiologists, Public Health Professionals
PREREQUISITES: Basic knowledge about birth defects
FORMAT: These seminars are live and pre-recorded webcasts. Seminars will be available on Web-on-demand. 
CONTACT INFORMATION: Centers for Disease Control and Prevention, National Center on Birth Defects and Developmental Disabilities, Division of Congenital and Developmental Disorders, 1-404-498-0205

CME activities with Joint Providers: This activity has been planned and implemented in accordance with the Essential Areas and policies of the Accreditation Council for Continuing Medical Education through the joint providership of the Centers for Disease Control and Prevention and National Birth Defects Prevention Network. The Centers for Disease Control and Prevention is accredited by the (ACCME®) to provide medical education for physicians. Physicians should claim only the credit commensurate with the extent of their participation in the activity.
The Centers for Disease Control and Prevention designates this enduring material for a maximum of 7 AMA PRA Category 1 Credits™. 
CNE: The Centers for Disease Control and Prevention is accredited as a provider of Continuing Nursing Education by the American Nurses Credentialing Center's Commission on Accreditation.
This activity provides 7 contact hours.
CEU: The Centers for Disease Control and Prevention is authorized by IACET to offer 0.7 CEU's for this program.
DISCLOSURE: In compliance with continuing education requirements, all presenters must disclose any financial or other associations with the manufacturers of commercial products, suppliers of commercial services, or commercial supporters as well as any use of unlabeled product(s) or product(s) under investigational use.
CDC, our planners, our presenters and their spouses/partners wish to disclose they have no financial interests or other relationships with the manufacturers of commercial products, suppliers of commercial services, or commercial supporters with the exception of Dr. Russell Kirby and he wishes to disclose his relationship with March of Dimes, Board of Directors-Tampa market, and his relationship with the Perinatal Foundation (Madison, WI), Board of Directors.
Planning committee discussed conflict of interest with Dr. Russell Kirby to ensure there is no bias.
Content will not include any discussion of the unlabeled use of a product or a product under investigational use.
The Centers for Disease Control and Prevention and National Birth Defects Prevention Network are jointly providing the CNE for this activity.
CDC did not accept commercial support for this activity.
To receive continuing education (CE):
Complete the activity
Complete the Evaluation at
FEES: No fees are charged for CDC’s CE activities.
  2016 Annual Meeting
The National Birth Defects Prevention Network (NBDPN) held its 19th Annual Meeting using a virtual meeting format.  
Tuesday, June 7, 2016
  • Welcome - Russ Kirby (FL), Marlene Anderka (MA)
  • NBDPN Opportunities and Collaborations - HL7 and EHR, Multi-state Data Projects, NBDPN Zika and Birth Defects - Glenn Copeland (MI), Philip Lupo (TX), Marlene Anderka (MA)

  • Brain Abnormalities - Embryology, Clinical, Prenatal, Surveillance
    • Embryology and brain fetal development - Thomas Sadler (MT)
    • Clinical phenotype - Cindy Moore (CDC)
    • Prenatal diagnosis - Jan Byrne (UT)
    • Surveillance and epidemiology of brain abnormalities related to Zika virus - Jan Cragan (CDC)
Wednesday, June 8, 2016 - Pre-Recorded Sessions
  • Health Service Utilization and Outcomes - Scott Grosse (CDC), Jim Robbins (AR)
  • Data Visualization and Display - Jason Salemi (TX)
  • Additions to Your Analytic Toolbox: Rare Outcomes and Poisson Regression - Sarah Tinker (CDC), Peter Langlois (TX)
Wednesday, June 8, 2016 - Live Sessions
  • Interactive Q&A and discussion covering all pre-recorded analytic sessions - Scottt Grosse (CDC), Jason Salemi (TX), Peter Langlois (TX)
  • Birth defects surveillance standards - Marlene Anderka (MA), Jason Salemi (TX)
  • ICD-10-CM and Birth Defects Surveillance - Barbara Warmerdam (CA), Jan Cragan (CDC), Rebecca Liberman (MA)
2015 Annual Meeting

National Birth Defects Prevention Network 18th Annual Meeting
Advances and Opportunities for Birth Defects Surveillance, Research and Prevention
Key Bridge Marriott, Arlington, VA

Monday, October 19, 2015
  • Current MCH / Birth Defects Policy Environment - Cindy Pelligrini (MOD)

  • Electronic Health Information Exchange for Birth Defects Surveillance - Laura Rappleye (MI) and Glenn Copeland (MI)
  • Around the Network
  • National Standards Development for Birth Defects Surveillance - Marlene Anderka (MA)
  • Multi-state Data Collaborative Projects - Mark Canfield (TX)
  • NBDPN Strategic Planning Implementation and Birth Defects Surveillance - Jane Correia (FL)

  • ICD-10-CM Transition and Birth Defects Surveillance - Jan Cragan (CDC)
  • Critical Congenital Heart Defect Screening: Lessons Learned and Collaborations  Between Birth Defects and Newborn Screening Programs - Keri Urquhart (MI) and Joan Ehrhardt (MI)
  • Time Monitoring and Cluster Investigations - Peter Langlois (TX), Sara Khan (CDC),  Suzanne Gilboa (CDC)
  • Analytic Data Methods - Peter Langlois (TX), Russell Kirby (FL), Sarah Tinker (CDC)
  • Birth Defects Data Visualization and Utilization  -  Mark Canfield (TX)
  • Parents as Partners to Raise Awareness on the Impact of Birth Defects - Jodi Lemacks (VA), Mattew Murphy (TX)

Tuesday, October 20, 2015
  • Embryology and Fetal Development - Vaibhav Pai (MA)
  • Hemifacial Microsomia - Jan Bryne (UT)
  • Laterality Defects (Heterotaxy and Situs Inversus) - Matt Oster (CDC)
  • Common Defects and Rare Syndromes with Asymmetry - Kim Keppler-Noreuil (NIH)
  • Prenatal Imaging for Selected Conditions - Jan Bryne (UT)
  • Clinical Coding for Selected Birth Defects with Asymmetry- Angela Scheuerle (TX)                                       
  • National Birth Defects Prevention Study (NBDPS) Research Findings, part 1
  • NBDPN Standards Data Quality Tools –Data Quality Performance Measures - Marlene Anderka (MA)

  • Best Practices and Resources for Operating Birth Defects Surveillance Programs -  Barbara Warmerdam (CA), Ann Phelps (TX), and Carol Stanton (CO)
  • National Birth Defects Prevention Study (NBDPS) research findings, part 2 - Mark Canfield (TX)
  • Prevention Strategies to Improve Birth Outcomes / Prevent Birth Defects - Dianna Contreras (AZ) and Kara Polen (CDC)
Wednesday, October 21, 2015

  • National Collaborative Studies on Risk Factors for Birth Defects
  • Genetics and Gene Interactions from an Epidemiologic Perspective - Suzan Carmichael (CA)
  • Fetal Therapy for Birth Defects and Long-term Outcomes - Katherine Wenstrom (RI)

  • Perspective from a Parent/Individual with Birth Defects