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Welcome to the National Birth Defects Prevention Network (NBDPN) website.
Founded in 1997, the NBDPN is an organization of state-based programs and other volunteers with an interest in birth defects surveillance, prevention, and serving the needs of children and families affected by birth defects. Find out more about our mission here.
Our members include public health officials, epidemiologists, health care providers, as well as parents and other passionate advocates. More on what our members do and the difference we make can be found here. If you want to be a part of that, please join us!
The NBDPN has accomplished a great deal in its first 20 years. Our Guidelines for Conducting Birth Defects Surveillance is a vital resource for new registries or for those wanting to improve what they do. Our annual reports have provided data from across the United States to researchers, public health agencies, and advocates. Brief Reports have tackled specific issues such as variability in prevalence data and the occurrence of microcephaly. Our Birth Defects Prevention Month Packet provides resources to assist state program and others interested in raising awareness. Our annual meetings and committees have been excellent venues for collaboration, mentorship, and problem-solving.
The arrival of Zika virus presented many challenges as birth defects registries dealt with the increased workload and the demand for more timely data. However, through close collaboration with the CDC and other partners, we successfully answered questions about timing, risk, and the spectrum of outcomes linked with Zika, and connected families to services in their community. Moreover, the Zika virus response catapulted birth defects into the awareness of Americans, and has led to new resources and partnerships for the birth defects community, and has prepared us with a model for the next emerging threat to pregnant women and babies.
I am confident that NBDPN and its partners will continue to rise to the challenge and find new ways to make a difference in the lives of children and families affected by birth defects.
Mahsa Yazdy, PhD, MPH
2019 NBDPN President