Founded in 1997, the NBDPN is an organization of state-based birth defects surveillance programs and other volunteers with an interest in birth defects surveillance, prevention and serving the needs of children and families affected by birth defects. Find out more about our mission here.
Our members include public health officials, epidemiologists, health care providers, as well as parents and other passionate advocates. More on what our members do and the difference we make can be found here.
The NBDPN has accomplished a great deal in its first 20 years. Our Guidelines for Conducting Birth Defects Surveillance is a vital resource for new registries or for those wanting to improve what they do. Our annual reports disseminate timely birth defects prevalence data from across the United States to researchers, public health agencies, and advocates. Our Birth Defects Prevention Month Packet provides materials and resources to assist state program staff and others interested in raising awareness. Our committees are wonderful venues for collaboration, mentorship, and problem-solving, and our 2018 annual meeting will feature a variety of plenary and breakout sessions to appeal to a diverse audience and re-invigorate our charge.