From the President

Welcome to the National Birth Defects Prevention Network (NBDPN) website.

Founded in 1997, the NBDPN is an organization of state-based programs and other volunteers with an interest in birth defects surveillance and prevention.  Learn about our mission, our members, what we do, and the difference we make.  More information can be found here.

The NBDPN has accomplished a great deal in its first 20 years, including a Surveillance Standards and Guidelines Manual that may be useful both for new registries and for those wanting to improve what they do.  Our annual reports provide data from across the United States to researchers, public health agencies, and advocates.  Brief Reports have tackled specific issues such as variability in prevalence data and the occurrence of microcephaly.  Our annual meetings and committees have been excellent resources for discussions about shared problems, and for doing collaborative data analyses and other work.

The arrival of Zika virus, on one hand, has presented challenges as birth defects registries deal with the increased workload, the demand for more timely data, renewed emphasis on the importance of referral to services, and follow-up to better understand outcomes.  The NBDPN is collaborating closely with CDC and other partners helping to address this continuing public health issue.  On the other hand, the Zika virus response has catapulted birth defects into the awareness of Americans and has introduced new resources and partnerships for birth defects surveillance, as we are called to stretch into new areas and activities.

I am confident that NBDPN can rise to that challenge and find powerful new ways to make a difference in the lives of children and families affected by birth defects.

Peter Langlois, PhD
2017 NBDPN President