State Programs and Related Links

Population-based Birth Defects Surveillance Programs

If your state birth defect surveillance program has a web site that you would like to have
listed please click here.

Internet Resources

a. Birth Defects Research and Prevention Information
 

• International Clearinghouse for Birth Defects Surveillance and Research
• March of Dimes (MOD) Foundation
• Organization for Teratology Information Services (OTIS)
• Spina Bifida Association (SBA)
• Teratology Society
• American Heart Association

b. Birth Defects Databases

• GeneTests
• iMedical Genetics, University of Kansas Medical Center

c. Family Support Groups/Information for Families

• The American College of Obstetricians and Gynecologists
• American Pregnancy Association
• My Family Health Portrait
• Mayo Clinic: Medical History, How to compile your family medical tree
• Genetic Alliance: Advocacy, Education & Empowerment
• Family Village:
• Internet Resources for Special Children (IRSC)
• Medline Plus: Pregnancy
• Our Kids 
• The Arc of the United States
• The Association of Maternal and Child Health Programs

d. Government Agencies

• CDC, National Center on Birth Defects and Developmental Disabilities
• CDC Pregnancy Information
• Education Resource Organization Directory
• National Guideline Clearinghouse (NGC)
• National Institutes of Health

e. Healthcare Professionals and Scientific Researchers

• American Academy of Pediatrics (AAP)
• The American College of Obstetricians and Gynecologists
• American Family Physician
• HuGE Net: The Human Genome Epidemiology Network
• Institute for Child Health Policy
• March of Dimes: Genetics & Your Practice Curriculum
• March of Dimes: Preconception Curriculum
• Knowledge Path: The Maternal and Child Health Library at Georgetown University
• The National Academies – Board on Children Youth and Families
• National Center for Biotechnology Information—Online Mendelian Inheritance in Man (OMIM)
• National Council on Folic Acid (NCFA)
• National Society of Genetic Counselors (NSGC)

Note:These sites have been assessed as useful for educational purposes. However, the NBDPN cannot guarantee the accuracy of all the content on these pages.

 CDC Birth Defects Surveillance Listserv

The CDC has established a listserv to enhance communication among people working at the state level in birth defects surveillance and prevention. A listserv is an e-mail forum where messages are posted to a common address which can be viewed by anyone subscribing to the listserv. Postings have included requests for information about cluster investigations, teratology web site addresses, announcements of meetings and job openings, requests for literature on birth defect surveillance, and minutes from the last meeting of birth defect surveillance programs. The NBDPN encourages all of its members and other interested persons to subscribe the listserv and join in the dialogue about birth defects.

To subscribe to CDC's Birth Defects Surveillance listserv, send the following internet e-mail:

TO: listserv@listserv.cdc.gov
SUBJECT: (leave blank)
MESSAGE: subscribe birth-defects-surv

If successful, you will get an e-mail reply with additional information about the listserv. If you have any problems subscribing, contact Cara Mai at cmai@cdc.gov.