Annual Meetings

• Current MCH / Birth Defects Policy Environment - Cindy Pelligrini (MOD)

• Electronic Health Information Exchange for Birth Defects Surveillance - Laura Rappleye (MI) and Glenn Copeland (MI)
• Around the Network
• National Standards Development for Birth Defects Surveillance - Marlene Anderka (MA)
• Multi-state Data Collaborative Projects - Mark Canfield (TX)
• NBDPN Strategic Planning Implementation and Birth Defects Surveillance - Jane Correia (FL)

• ICD-10-CM Transition and Birth Defects Surveillance - Jan Cragan (CDC)
• Critical Congenital Heart Defect Screening: Lessons Learned and Collaborations  Between Birth Defects and Newborn Screening Programs - Keri Urquhart (MI) and Joan Ehrhardt (MI)
• Time Monitoring and Cluster Investigations - Peter Langlois (TX), Sara Khan (CDC),  Suzanne Gilboa (CDC)

• Analytic Data Methods - Peter Langlois (TX), Russell Kirby (FL), Sarah Tinker (CDC)
• Birth Defects Data Visualization and Utilization  -  Mark Canfield (TX)
• Parents as Partners to Raise Awareness on the Impact of Birth Defects - Jodi Lemacks (VA), Mattew Murphy (TX)

• Embryology and Fetal Development - Vaibhav Pai (MA)
• Hemifacial Microsomia - Jan Bryne (UT)
• Laterality Defects (Heterotaxy and Situs Inversus) - Matt Oster (CDC)
• Common Defects and Rare Syndromes with Asymmetry - Kim Keppler-Noreuil (NIH)
• Prenatal Imaging for Selected Conditions - Jan Bryne (UT)

• Clinical Coding for Selected Birth Defects with Asymmetry- Angela Scheuerle (TX)                                       
• National Birth Defects Prevention Study (NBDPS) Research Findings, part 1
• NBDPN Standards Data Quality Tools –Data Quality Performance Measures - Marlene Anderka (MA)

• Best Practices and Resources for Operating Birth Defects Surveillance Programs -  Barbara Warmerdam (CA), Ann Phelps (TX), and Carol Stanton (CO)
• National Birth Defects Prevention Study (NBDPS) research findings, part 2 - Mark Canfield (TX)
• Prevention Strategies to Improve Birth Outcomes / Prevent Birth Defects - Dianna Contreras (AZ) and Kara Polen (CDC)

• National Collaborative Studies on Risk Factors for Birth Defects
• Genetics and Gene Interactions from an Epidemiologic Perspective - Suzan Carmichael (CA)

• Fetal Therapy for Birth Defects and Long-term Outcomes - Katherine Wenstrom (RI)

• Perspective from a Parent/Individual with Birth Defects

• Welcome & introduction to the virtual meeting series - Russell Kirby (FL)

• Synergistic collaborations through NBDPN: the whole is greater than the sum of its parts - Paul Romitti (IA)

• Standards for birth defects surveillance: implementation of data quality assessment - Marlene Anderka (MA)

• Taking the next steps: population based birth defects programs continue to guide the way -          Jennita Reefhuis (CDC)

• Opportunities and direction for birth defects surveillance, research and prevention - Margaret Honein (CDC)

• Electronic health records: experience from a state birth defects program - Glenn Copeland (MI)

• Insights from parents: NBDPN parent advisory group - Jodi Lemacks (VA) and Kayte Thomas (NC)

• Welcome and Introduction  - Paul Romitti (IA)

• Back to the basics & current practice of population based birth defects surveillance in the United States - Paul Romitti (IA) and Cara Mai (CDC)

• Practical experience from state programs: data collection, management, and utilization - Barbara Warmerdam (CA) and Jane Correia (FL)

• Data quality for birth defects surveillance - Carol Stanton (CO)

• Emerging issues impacting birth defects surveillance (ICD- 10 Implementation and Electronic  Data  Collection and Process) - Barbara Warmerdam (CA), Janet Cragan (CDC), Jane Correia  (FL),Diana Sampat (FL), Carol Stanton (CO)

8:00AM-8:50AM         

• NBDPN – Russell Kirby (FL)
• NBDPS - Paul Romitti (IA)
• March of Dimes - Melanie Lockhart (MOD)
• CDC Welcome - Coleen Boyle (CDC)
   

8:50AM-10:25AM         

• Electronic health records  
• Moderator: Glenn Copeland (MI) Speakers: Jennifer Horowitz (MI), Shaun Grannis (IN), Sandy Jones (CDC)
   

10:45AM-12:00PM      

• Birth Defects Surveillance Standards  - Marlene Anderka (MA)
• Multi-state Data Collaborations - Mark Canfield (TX)
• Raising Birth Defects Awareness – Partnership with Parents - Marcia Feldkamp (UT) and NBDPN PAG

1:30PM–3:00PM        

• Standards for Birth Defects Surveillance: Assessment Tools-Moderator: Marlene Anderka (MA), Speakers: Wendy Sklenka (GA), Paula Rezutko-Custic (IL), Lynda Douglas (CDC)
• Analytic Methods for Real-time and Retrospective Monitoring - Moderators: Russell Kirby (FL) and Russel Rickard (CO)Speakers: Peter Langlois (TX), Owen Devine (CDC)
• Working with Electronic Medical Records: Finding the New Normal Moderator: Barbara Warmerdam (CA)
  (IA)Pual Romitti (UT), Marcia FeldkampSpeakers: Carol Stanton (CO), Mark Canfield (TX)

3:30PM-5:00PM         

• Critical Congenital Heart Defects Screening: Birth Defects and Newborn Screening Program Interactions Moderator: Richard Olney (CDC) Speakers: Richard Olney (CDC), Janice Bach (MI), Marcia Feldkamp (UT)
• ICD10-CM Coding Updates. Moderator: Barbara Warmerdam (CA) Speakers: Donna Pickett (CDC), Janet Cragan (CDC)
• Communication Strategies for Program Effectiveness. Moderator: Angela Colson (CDC) Speakers: Cara Mai (CDC), Angela Colson (CDC), Amy Nance (UT), Veronica Smith (AR)

Tuesday, February 26, 2013

8:00AM-12:00PM        

• Congenital Heart Defects (CHD) Moderator: Angela Lin (MA)
• Heart Development: Early Patterning Portends the Quality of Pitter-patter - Thomas Sadler (UT)
  Lopez (TX)KeilaPublic Health Aspects of CHD -
• CHD review, I:  The complex “early” defects (laterality defects, single ventricle, conotruncal) - Matt Oster (GA)

10:15AM-12:00PM     

• CHD review, II: “Everything else” (RV/LVOTO, ASD, VSD, TAPVC, PAPVC, PDA, Ebstein) - Matt Oster (GA)
• Prenatal Testing and Ultrasonography - Jan Byrne (UT)

1:30PM–3:00PM       

 

• Show Your Love and Get Involved - Join to Learn More About a New National Preconception Health Social Marketing Campaign - Moderator: Elizabeth Mitchell (CDC), Samara Viner-Brown (RI)
• NBDPS Research, Part 1 -  Moderator: Charlotte Druschel (NY)  Speakers: Charlotte Hobbs (AR), Suzan Carmichael (CA), Carissa Rocheleau (CDC), Marcia Feldkamp (UT), Amy Herring (NC), Adrienne T Hoyt (TX)
• Common Syndromes Associated With Congenital Heart Defects - Angela Lin (MA) and Tiffany Colarusso (CDC) Coding Cardiac Defects - Angela Scheuerle (TX)

3:30PM-5:00PM         

• Enhancing Birth Defects Program Infrastructure to Examine Other Conditions, e.g. Rare disorders, Stillbirths
• Moderator: Russell Kirby (FL) Speakers: Paul Romitti (IA), Ying Wang (NY)
• Making the Data Talk: Analysis of Existing Databases for Health Services and Outcomes Research in Birth Defects. Moderator: Cynthia Cassell (CDC) Speakers: Mark A. Canfield (TX), Scott Grosse (CDC), Elizabeth Radcliff (NC), and Stephanie Watkins (NC)
• NBDPS Research, Part 2 Moderator:  Marlene Anderka (MA) Speakers: Kim Waller (TX), Jeanette Stingone (NC), Elizabeth Ailes (CDC), Martha Werler (MA), Samantha Parker (MA), Marilyn Browne (NY)

Wednesday, February 27, 2013

9:00 AM-9:30 AM                      

• Godfrey Oakley Award: Lifetime Achievement in Birth Defects

9:30 AM-10:00 AM                 

• Future of the Centers for Birth Defects Research and Prevention (CBDRP) Jennita Reefhuis (CDC)

10:00AM-10:45AM                    

• Medication Exposure in Pregnancy Risk Evaluation Program (MEPREP)- Moderator: Margaret Honein  (CDC) Speaker: Susan Andrade (MA)

12:00-12:30 PM                        

• A Family Story: Chuck and Laura Lewis with their son Ryan

12:30 PM                                 

• NBDPN/NBDPS Joint Conference Concludes