2:10 PM - 2:25 PM
2:25 pm - 2:55 PM
2:55 PM - 3:25 PM
3:25 PM - 3:45 PM
3:50 PM - 4:20 PM
4:20 PM - 4:50 PM
2:00 PM - 2:05 PM
Welcome - Peter Langlois (TX)
2:05 PM - 2:30 PM
Opportunities to enhance birth defects epidemiology and health services research with clinical and administrative data sources - Russell Kirby (FL)
2:30 PM - 3:05 PM
Hospital resource use and cost analyses using hospital discharge and Medicaid data - Elizabeth Radcliff (NC) and Cynthia Cassell (CDC)
3:05 PM - 3:30 PM
Using death records to understand disparities and survival - Wendy Nembhard (FL)
3:35 PM - 4:00 PM
Early intervention enrollment analysis of birth defect cases - Chris Borger (MA)
4:00 PM - 4:15 PM
Exploring novel data linkages for birth defects registries - Mark Canfield (TX)
4:15 PM - 4:45 PM
Discussion of data sources and uses - Peter Langlois (TX)
Wednesday, May 28, 2014
Session 4 Agenda
2:00 PM - 2:05 PM
Welcome and Introduction - Richard Olney (CDC)
2:05 PM - 2:15 PM
Godfrey P. Oakley Award
2:15 PM - 2:50 PM
Dysmorphology approach to the newborn with multiple birth defects - Lorenzo Botto (UT)
2:50 PM - 3:40 PM
Common congenital malformation associations - Angela Scheuerle (TX)
3:45 PM - 4:30 PM
Embryology of multiple birth defects - Thomas Sadler (MT)
4:30 PM - 5:00 PM
Prenatal imaging of selected patterns - Jane Byrne (UT)
2013 Annual Meeting
2013 National Birth Defects Prevention Network (NBDPN) Annual Meeting Joint Meeting with the National Birth Defects Prevention Study (NBDPS)
February 25-27, 2013
Atlanta, Georgia
Monday, February 25, 2013
8:00AM-8:50AM Welcoming Opening Plenary Session
NBDPN – Russell Kirby (FL)
NBDPS - Paul Romitti (IA)
March of Dimes - Melanie Lockhart (MOD)
CDC Welcome - Coleen Boyle (CDC)
8:50AM-10:25AM Plenary Session
Electronic health records
Moderator: Glenn Copeland (MI) Speakers: Jennifer Horowitz (MI), Shaun Grannis (IN), Sandy Jones (CDC)
10:45AM-12:00PM Around the Network: Birth Defects Surveillance, Collaborations and Prevention
Birth Defects Surveillance Standards - Marlene Anderka (MA)
Multi-state Data Collaborations - Mark Canfield (TX)
Raising Birth Defects Awareness – Partnership with Parents - Marcia Feldkamp (UT) and NBDPN PAG
1:30PM–3:00PM Concurrent Breakout Session A
Standards for Birth Defects Surveillance: Assessment Tools-Moderator: Marlene Anderka (MA)
Speakers: Carol Stanton (CO), Mark Canfield (TX), Marcia Feldkamp (UT), Paul Romitti (IA)
Analytic Methods for Real-time and Retrospective Monitoring - Moderators: Russell Kirby (FL) and Russel Rickard (CO)Speakers: Peter Langlois (TX), Owen Devine (CDC)
Working with Electronic Medical Records: Finding the New Normal Moderator: Barbara Warmerdam (CA)
Speakers: Wendy Sklenka (GA), Paula Rezutko-Custic (IL), Lynda Douglas (CDC)
3:30PM-5:00PM Concurrent Breakout Session B
Critical Congenital Heart Defects Screening: Birth Defects and Newborn Screening Program Interactions Moderator: Richard Olney (CDC) Speakers: Richard Olney (CDC), Janice Bach (MI), Marcia Feldkamp (UT)
ICD10-CM Coding Updates. Moderator: Barbara Warmerdam (CA) Speakers: Donna Pickett (CDC), Janet Cragan (CDC)
Communication Strategies for Program Effectiveness. Moderator: Angela Colson (CDC) Speakers: Cara Mai (CDC), Angela Colson (CDC), Amy Nance (UT), Veronica Smith (AR)
Tuesday, February 26, 2013
8:00AM-12:00PM Plenary Session
Congenital Heart Defects (CHD)
Moderator: Angela Lin (MA)
Heart Development: Early Patterning Portends the Quality of Pitter-patter - Thomas Sadler (UT)
Public Health Aspects of CHD - Keila Lopez (TX)
CHD review, I: The complex “early” defects (laterality defects, single ventricle, conotruncal) - Matt Oster (GA)
10:15AM-12:00PM Plenary Session continues
CHD review, II: “Everything else” (RV/LVOTO, ASD, VSD, TAPVC, PAPVC, PDA, Ebstein) - Matt Oster (GA)
Prenatal Testing and Ultrasonography - Jan Byrne (UT)
1:30PM–3:00PM Concurrent Breakout Session C
Common Syndromes Associated With Congenital Heart Defects - Angela Lin (MA) and Tiffany Colarusso (CDC)
Coding Cardiac Defects - Angela Scheuerle (TX)
Show Your Love and Get Involved - Join to Learn More About a New National Preconception Health Social Marketing Campaign - Moderator: Elizabeth Mitchell (CDC), Samara Viner-Brown (RI)
NBDPS Research, Part 1 - Moderator: Charlotte Druschel (NY) Speakers: Charlotte Hobbs (AR), Suzan Carmichael (CA), Carissa Rocheleau (CDC), Marcia Feldkamp (UT), Amy Herring (NC), Adrienne T Hoyt (TX)
3:30PM-5:00PM Concurrent Breakout Session D
Enhancing Birth Defects Program Infrastructure to Examine Other Conditions, e.g. Rare disorders, Stillbirths
Moderator: Russell Kirby (FL) Speakers: Paul Romitti (IA), Ying Wang (NY)
Making the Data Talk: Analysis of Existing Databases for Health Services and Outcomes Research in Birth Defects. Moderator: Cynthia Cassell (CDC) Speakers: Mark A. Canfield (TX), Scott Grosse (CDC), Elizabeth Radcliff (NC), and Stephanie Watkins (NC)
NBDPS Research, Part 2 Moderator: Marlene Anderka (MA) Speakers: Kim Waller (TX), Jeanette Stingone (NC), Elizabeth Ailes (CDC), Martha Werler (MA), Samantha Parker (MA), Marilyn Browne (NY)
Wednesday, February 27, 2013
9:00 AM-9:30 AM
9:30 AM-10:00 AM
Future of the Centers for Birth Defects Research and Prevention (CBDRP) Jennita Reefhuis (CDC)
10:00AM-10:45AM
Medication Exposure in Pregnancy Risk Evaluation Program (MEPREP)- Moderator: Margaret Honein (CDC) Speaker: Susan Andrade (MA)
12:00-12:30 PM
A Family Story: Chuck and Laura Lewis with their son Ryan
12:30 PM NBDPN/NBDPS Joint Conference Concludes