PROGRAM DESCRIPTION: The training is designed to increase knowledge and change competency of current practices in birth defects surveillance and research to improve public health efforts to prevent birth defects. The 2019 NBDPN Virtual Meeting will cover topics in birth defects surveillance, research, and prevention to keep public health and medical professionals abreast of current issues affecting the field of birth defects. This new knowledge should aid them in understanding current national standards and guidelines for improving birth defects surveillance. Additionally, we will provide updates on data analysis methodologies, surveillance for chromosomal defects, and the use of electronic health records. This will be a multi-day virtual meeting composed of pre-recorded sessions. We will have eight speakers from organizations such as Centers of Disease Control and Prevention, Baylor College of Medicine, Boston University School of Public Health, and Michigan Department of Health.
OBJECTIVES:
At the conclusion of the session, the participant will be able to:
1. Describe the use of, and accuracy of, at least two genetic diagnostic methods. 2. Identify two pros and two cons between using data mining versus traditional analysis methods. 3. Describe the basic approach to calculating and interpreting p-values and confidence intervals. 4. Describe three concepts in leveraging health information exchange for public health surveillance. 5. Explain the difference between non-invasive screening and genetic testing and their implications for treatment. 6. Describe the importance of inter-professional collaboration in birth defects surveillance, research, and epidemiology.
FACULTY/CREDENTIALS:
Clinton Alverson, MS, MS, Mathematical Statistician Centers for Disease Control and Prevention
Georgetta Alverson, CTR, Birth Defects & Cancer Surveillance Section Manager Michigan Department of Health & Human Services
Melissa Danielson, MSPH, Statistician Centers for Disease Control and Prevention
Sarah Obian, MD, Assistant Professor and Medical Director of MotherToBaby Florida University of South Florida
Julie Petersen, MPH (PhD Candidate), Statistical Analyst and Doctoral Student Boston University School of Public Health
Daniel Riconda, MS, CGC, Genetic Counseling Program Director Baylor College of Medicine
Angela Scheuerle, MD, FACMG, Professor, Department of Pediatrics, Division of Genetics and Metabolism, University of Texas Southwestern Medical Center
HARDWARE/SOFTWARE: Computer Hardware; Internet connection; Browser
MATERIALS: None
TARGET AUDIENCE: Administrators, Advance Practice Nurses, DOs, Epidemiologists, Licensed Practical/Vocational Nurses, MDs, Other Health Educators, Physician Assistants, Program Managers, Registered Nurses, Health Scientists
PREREQUISITES: Basic knowledge about birth defects.
FORMAT: This content is web-on-demand
CONTACT INFORMATION: Centers for Disease Control and Prevention, National Center on Birth Defects and Developmental Disabilities, Division of Congenital and Developmental Disorders, 1-404-498-0205
ACCREDITATION STATEMENTS:
CME activities with Joint Providers: This activity has been planned and implemented in accordance with the Essential Areas and policies of the Accreditation Council for Continuing Medical Education through the joint providership of the Centers for Disease Control and Prevention and the National Birth Defects Prevention Network. The Centers for Disease Control and Prevention is accredited by the (ACCME®) to provide medical education for physicians.
The Centers for Disease Control and Prevention designates this enduring material for a maximum of 4.5 AMA PRA Category 1 Credits™. Physicians should claim only the credit commensurate with the extent of their participation in the activity
CNE: The Centers for Disease Control and Prevention is accredited as a provider of Continuing Nursing Education by the American Nurses Credentialing Center's Commission on Accreditation.
This activity provides 4.4 contact hours.
CEU: The Centers for Disease Control and Prevention is authorized by IACET to offer 0.4 CEU's for this program.
CECH: Sponsored by the Centers for Disease Control and Prevention, a designated provider of continuing education contact hours (CECH) in health education by the National Commission for Health Education Credentialing, Inc. This program is designated for Certified Health Education Specialists (CHES®) and/or Master Certified Health Education Specialists (MCHES®) to receive up to 4.5 total Category I continuing education contact hours. Maximum advanced level continuing education contact hours available are 0. CDC provider number 98614.
DISCLOSURE: In compliance with continuing education requirements, all presenters must disclose any financial or other associations with the manufacturers of commercial products, suppliers of commercial services, or commercial supporters as well as any use of unlabeled product(s) or product(s) under investigational use.
CDC, our planners, our content experts, and their spouses/partners wish to disclose they have no financial interests or other relationships with the manufacturers of commercial products, suppliers of commercial services, or commercial supporters with the exception of Dr. Russell Kirby and he wishes to disclose that he receives core funding as a Principle Investigator for University of South Florida Birth Defects Surveillance Program with funding from Florida Department of Health and Centers for Disease Control and Prevention, and that he is a consultant for March of Dimes, Tampa market Board of Directors, and with the exception of Mr. Daniel Riconda and he wishes to disclose that he served as a consultant to AstraZenecaTaiwan to provide genetic counseling training in Taiwan
Planning committee discussed conflict of interest with Dr. Russell Kirby and Mr. Daniel Riconda to ensure there is no bias.
Content will not include any discussion of the unlabeled use of a product or a product under investigational use.
The Centers for Disease Control and Prevention and National Birth Defects Prevention Network are jointly providing the CNE for this activity.
CDC did not accept commercial support for this continuing education activity.
Instructions for Obtaining Continuing Education (CE)
In order to receive continuing education (CE) for WD4190-2019 National Birth Defects Prevention Network Virtual Annual Meeting please visit TCEO and follow these 9 Simple Steps before May 1, 2021
National Birth Defects Prevention Network 21st Annual Meeting Advances and Opportunities for Birth Defects Surveillance, Research and Prevention Buckhead Marriott Hotel and Conference Center, Atlanta, GA
Monday, March 12, 2018
8:00AM-8:30AM Welcome Opening Plenary Session
NBDPN – Jason Salemi (TX), Russell Kirby (FL)
March of Dimes – Katie Sellers (MOD)
CDC – Coleen Boyle (CDC)
8:30AM-8:45AM Plenary Sessions
Decades of Birth Defects Surveillance and Research at CDC: Celebrating MACDP and NBDPS – Jennita Reefhuis (CDC)
Protecting Mothers and Babies from Emerging and Known Health Threats: The Critical Role of Birth Defects Surveillance – Margaret (Peggy) Honein (CDC)
The Future of Birth Defects Surveillance: Real Time Clinical Information Messaging of Reportable Conditions – Glenn Copeland (MI)
10:15AM-12:00PM Plenary Session: Around the Network
Multi-state Data Collaborations – Philip Lupo (TX)
National Standards for Birth Defects Surveillance – Marlene Anderka (MA)
Birth Defects Surveillance Program Survey – Marlene Anderka (MA)
NBDPN Business Update – Amy Nance (UT)
NBDPN Strategic Plan Implementation – Jane Correia (FL)
NBDPN Awards – Peter Langlois (TX)
1:30PM–3:00P Concurrent Breakout Session A
A1. The Ins and Outs of Trend Analysis in Birth Defects Surveillance – CJ Alverson (CDC), Peter Langlois (TX),
Jason Salemi (TX)
A2. State Experiences in Accessing and Using Electronic Medical Data – Glenn Copeland (MI), Paul Romitti (IA),
Monica Clouse (KY), Meredith Howley (NY)
A3. Translating Birth Defects Surveillance Data and Prevention Messages into Actionable Digital Media Content – Jay Dempsey (CDC)
3:30PM-5:00PM Concurrent Breakout Session B
B1. Practical Applications of Spatial Analysis in Birth Defects Surveillance – Michael Kramer (GA), Russell Kirby (FL)
B2. Data Quality Lifecycle for Collecting and Managing Birth Defects Surveillance Data – Mahsa Yazdy (MA), Terri Escobar (TX), Kimberlea Hauser (PA), Jason Salemi (TX)
B3. Role of State Birth Defects Surveillance Programs in Service Referral, Gap Identification, and Evaluation – Cara Mai (CDC), Barbara Frohnert (MN), Jane Fornoff (IL), Robert Meyer (NC)
Tuesday, March 13, 2018
8:30AM-12:00PM Plenary Session: Disorders of Sex Development (DSD): Embryology, Etiology, Epidemiology
The Origin of Males and Females – Thomas Sadler (UT)
Sex Chromosome Abnormality Syndromes – Doris Fadoju (GA)
Prenatal Diagnosis: Disorders of Sex Development/Differences – Martina Badell (GA)
Ambiguous Genitalia – Management, Treatment, Clinical Issues from the Endocrine Perspective – Briana Patterson (GA)
The Experience of Disorders (or Differences) of Sex Development (DSD) – David Sandberg (MI)
1:30PM–3:00PM Concurrent Breakout Session C
C1. Coding Disorders of Sex Development – Angela Scheurele
C2. Critical Congenital Heart Defects: Screening, Monitoring, and Outcomes – Matthew Oster (CDC), Marci Sontag (CO), Amy Gaviglio (MN), Heather Pint (MN), Joan Ehrhardt (MI)
C3. Complexity of Birth Defects Diagnoses: Collection, Management, and Analysis (computerized case classification, diagnostic information storage, etc.) – Janet Cragan (CDC), Peter Langlois (TX), Jason Salemi (TX)
3:30PM-5:00PM Concurrent Breakout Session D
D1. Research Updates from the Centers for Birth Defects Research and Prevention (CBDRP), National Birth Defects Prevention Study (NBDPS) – Jonathan Suhl (IA), Kari Weber (CA), Nina Forestieri (NC), Kayla Anderson (CDC), Meredith Howley (NY), Joseph Levy (AR), Dominique Heinke (MA)
D2. Implications of Coding Changes to Birth Defects Surveillance – Janet Cragan (CDC), Shawn Wells (UT), Barbara Warmerdam (CA), Carol Stanton (CO), Rebecca Liberman (MA)
D3. Sustaining Birth Defects Surveillance Through Leadership Transition and Other Major Shifts – Alina Flores (CDC), Mark Canfield (TX)
Wednesday, March 13, 2018
9:00AM-10:00AM Plenary Session
The Challenge of Substance-Exposed Newborns – Mark Hudak (FL)
10:15AM-11:15AM Plenary Session: Health Outcomes for Children Born with NAS and FASD
NAS Surveillance Study – Jane Fornoff (IL)
Educational Disabilities Among Children Born with Neonatal Abstinence Syndrome – Mary-Margaret Fill (TN)
FASD: Neurodevelopmental Outcomes and their Habilitative Care Needs – Julie Kable (GA)
11:15AM-11:50AM Inspirational Family Story
Family adopted a boy with FAS – Donnie Winokur and Quinn (service dog)
The scientific sessions from the 2017 NBDPN Virtual Annual Meeting are available for viewing as CEU enduring materials. If you have questions, please contact nbdpn@nbdpn.org. The CEU course name is WC2871 - (Webcast) 2017 NBDPN Virtual Annual Meeting - Atlanta, GA - September 13-14, 2017. Participants must watch the sessions and evaluate them on TCEO online in order to receive CEs.
Welcome & NBDPN Current Issues and Events Speaker: Peter Langlois
8:00-9:00 AM ET
Uses of Spatial Analysis with Birth Defects Registry Data Speakers: Rusell Kirby, Eric Delmelle, Tabassum Insaf, Mahsa Yazdy
1:30-3:30 PM ET
Congenital Infections and Related Birth Defects
9:00-10:00 AM ET
From Birth Defects Awareness to Improving Birth Outcomes: Tools and Applications for Birth Defects Prevention Speakers: Alina Flores, Amy Nance, Samara Viner-Brown
1:30-1:45 PM ET
Introductions & Session Overview Speaker: Peter Langlois
10:30-11:30 PM ET
Top Ways to Improve Surveillance Data Speaker: Jason Salemi
1:45-2:15 PM ET
Proving Causation: How Do We Prove That an Infectious Agent is a Teratogen? Speaker: Sonja Rasmussen
11:30-12:30 PM ET
The Art of Medical Record Abstraction Speaker: Janet Cragan
2:15-3:00 PM ET
Congenital Abnormalities Resulting from Congenital Infections Speaker: Cynthia Moore
1:30-2:30 PM ET
Zika’s Impact on Population-Based Birth Defects Surveillance Speakers: Cara Mai, Julie Dunn, Jane Fornoff, Joan Ehrhardt
3:30-4:00 PM ET
LIVE Q&A
3:00-4:00 PM ET
LIVE Q&A and Wrap-up & Closing
3:30-4:00 PM ET
Interactive Q&A and discussion covering pre-recorded sessions Host: Jennita Reefhuis
3:00-3:45 PM ET
Interactive Q&A and discussion covering all pre-recorded sessions Host: Jennita Reefhuis
3:45-4:00 PM ET
Wrap-up & Closing Speaker: Jason Salemi
PROGRAM DESCRIPTION: Seminars are designed to increase knowledge and change competency of current practices in birth defects surveillance and research to improve public health efforts to prevent birth defects. The 2017 NBDPN Virtual Meeting will cover topics in birth defects surveillance, research, and prevention to keep public health and medical professionals abreast of current issues affecting the field of birth defects. This new knowledge should aid them in understanding current national standards and guidelines for improving birth defects surveillance. Additionally, we will provide updates on risk factors for birth defects, specifically Zika virus and other congenital infections. This will be two day virtual meeting with a mix of pre-recoded and live sessions. We will have 18 speakers from organizations such as Centers of Disease Control and Prevention, University of Texas School of Public Health, Baylor College of Medicine, Boston University School of Public Health, Utah Department of Health.
OBJECTIVES: At the conclusion of the session, the participant will be able to:
Describe at least two congenital infections that have been associated with congenital anomalies.
Identify at least two limitations in using maternal residential address on birth certificates as locations for exposure assessment in birth defects epidemiology.
Identify at least one specific strategy for engaging partners in birth defects awareness campaigns.
List at least two practical ways to improve birth defects surveillance data.
Define at least two necessary characteristics of high quality birth defects data abstraction.
Describe at least one challenge experienced by states performing Zika birth defects surveillance and at least one way that challenge can be overcome.
FACULTY/ CREDENTIALS:
Martina Badell, MD Emory University
Janet Cragan, MD, MPH Centers for Disease Control and Prevention
Eric Delmelle, MA, MS, PhD University of North Carolina at Charlotte
Julie Dunn, PhD Massachusetts Department of Public Health
Joan Ehrhardt, MS, CGC Michigan Department of Health and Human Services
Catherine Eppes, MD, MPH Baylor College of Medicine
Alina Flores, DrPH, MPH, CHES Centers for Disease Control and Prevention
Jane Fornoff, DPhil Illinois Department of Public Health
Tabassum Insaf, MBBS, MPH, PhD New York State Department of Health
Russell Kirby, PhD, MS, FACE University of South Florida
Peter Langlois, PhD Texas Department of State Health Services
Cara Mai, DrPH, MPH Centers for Disease Control and Prevention
Cynthia Moore, MD, PhD Centers for Disease Control and Prevention
Amy Nance, MPH Utah Department of Health
Sonja Rasmussen, MD, MS Centers for Disease Control and Prevention
Jason Salemi, PhD, MPH Baylor College of Medicine
Samara Viner-Brown, MS Rhode Island Department of Health
Mahsa Yazdy, PhD, MPH Massachusetts Department of Public Health
Webcast: ORIGINATION DATE: September 14, 2017 RENEWAL DATE: EXPIRATION DATE: October 16, 2017
Web-on-Demand: Origination Date: October 17, 2017 Expiration Date: October 17, 2019
HARDWARE/SOFTWARE: Computer Hardware; Internet connection; Browser
MATERIALS: None
TARGET AUDIENCE: Physicians, Registered Nurses, Administrators, DOs, Epidemiologists, Public Health Professionals
PREREQUISITES: Basic knowledge about birth defects
FORMAT: These seminars are live and pre-recorded webcasts. Seminars will be available on Web-on-demand.
CONTACT INFORMATION: Centers for Disease Control and Prevention, National Center on Birth Defects and Developmental Disabilities, Division of Congenital and Developmental Disorders, 1-404-498-0205
ACCREDITATION STATEMENTS:
CME activities with Joint Providers: This activity has been planned and implemented in accordance with the Essential Areas and policies of the Accreditation Council for Continuing Medical Education through the joint providership of the Centers for Disease Control and Prevention and National Birth Defects Prevention Network. The Centers for Disease Control and Prevention is accredited by the (ACCME®) to provide medical education for physicians. Physicians should claim only the credit commensurate with the extent of their participation in the activity.
The Centers for Disease Control and Prevention designates this enduring material for a maximum of 7 AMA PRA Category 1 Credits™.
CNE: The Centers for Disease Control and Prevention is accredited as a provider of Continuing Nursing Education by the American Nurses Credentialing Center's Commission on Accreditation.
This activity provides 7 contact hours.
CEU: The Centers for Disease Control and Prevention is authorized by IACET to offer 0.7 CEU's for this program.
DISCLOSURE: In compliance with continuing education requirements, all presenters must disclose any financial or other associations with the manufacturers of commercial products, suppliers of commercial services, or commercial supporters as well as any use of unlabeled product(s) or product(s) under investigational use.
CDC, our planners, our presenters and their spouses/partners wish to disclose they have no financial interests or other relationships with the manufacturers of commercial products, suppliers of commercial services, or commercial supporters with the exception of Dr. Russell Kirby and he wishes to disclose his relationship with March of Dimes, Board of Directors-Tampa market, and his relationship with the Perinatal Foundation (Madison, WI), Board of Directors.
Planning committee discussed conflict of interest with Dr. Russell Kirby to ensure there is no bias.
Content will not include any discussion of the unlabeled use of a product or a product under investigational use.
The Centers for Disease Control and Prevention and National Birth Defects Prevention Network are jointly providing the CNE for this activity.
CDC did not accept commercial support for this activity.
To receive continuing education (CE):
Complete the activity Complete the Evaluation at www.cdc.gov/TCEOnline
FEES: No fees are charged for CDC’s CE activities.
2016 Annual Meeting
The National Birth Defects Prevention Network (NBDPN) held its 19th Annual Meeting using a virtual meeting format.
Tuesday, June 7, 2016
1:00PM-2:00PM
Welcome - Russ Kirby (FL), Marlene Anderka (MA)
NBDPN Opportunities and Collaborations - HL7 and EHR, Multi-state Data Projects, NBDPN Zika and Birth Defects - Glenn Copeland (MI), Philip Lupo (TX), Marlene Anderka (MA)
ICD-10-CM and Birth Defects Surveillance - Barbara Warmerdam (CA), Jan Cragan (CDC), Rebecca Liberman (MA)
2015 Annual Meeting
National Birth Defects Prevention Network 18th Annual Meeting Advances and Opportunities for Birth Defects Surveillance, Research and Prevention Key Bridge Marriott, Arlington, VA
National Standards Development for Birth Defects Surveillance - Marlene Anderka (MA)
Multi-state Data Collaborative Projects - Mark Canfield(TX)
NBDPN Strategic Planning Implementation and Birth Defects Surveillance - Jane Correia (FL)
1:30PM-3:00PM
ICD-10-CM Transition and Birth Defects Surveillance - Jan Cragan(CDC)
Critical Congenital Heart Defect Screening: Lessons Learned and Collaborations Between Birth Defects and Newborn Screening Programs - Keri Urquhart (MI) and Joan Ehrhardt (MI)
Time Monitoring and Cluster Investigations - Peter Langlois (TX), Sara Khan (CDC), Suzanne Gilboa (CDC)
