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The Annual Meeting Committee for the National
Birth Defects Prevention Network invites submissions of abstracts
of posters for the 2009 Annual Meeting in Nashville, Tennessee,
from February 23-25, 2009. This
year we are requesting posters that address the following topics. Suggested
sub‑topics are listed below each topic; presenters may cover
a topic in general terms or in detail.
SUGGESTED POSTER TOPICS
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Case ascertainment -Innovative approaches,
use of physician office data, prenatal surveillance, pediatric
disease registries, record linkage, quality assurance/ quality
control, evaluation of sources, ascertainment of congenital
head and neck defects, collaborative projects with newborn
screening program
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Birth defects risk factors -
Prescription and over-the-counter medicines, alcohol and
illegal drugs, infectious agents, hazardous substances, environmental
or genetic risk factors, obesity, maternal risk factors,
genetic risk factors, fertility treatments
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Birth defects rates and trends - Graphical
presentation of data, statistical assessment (simple or complex),
cluster evaluations, meta-analyses, use of surveillance data
to measure outcomes
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Prevention, intervention, and public policy -
Evaluation of prevention or intervention activities, use of
birth defect registries to link to services, preconception
care and birth defects, state based prevention programs, improving
access to services, analysis of public policy, analysis of
public awareness, use data to affect public policy
Deadline for submission
is Friday, November 21, 2008.
To submit your abstract, click
here. If
you have any questions, please contact April Montgomery at April.Montgomery@state.co.us.
Please organize your abstract into the following format: Objective,
Methods, Results, and Conclusions. Title should include
Your Program Name (one line), Poster Title (up to two lines), Authors
(one line, no degrees or titles). Also indicate the
poster topic category (1-4). See the attached example. The
Conference Committee will review the abstracts and notify submitters
by December 12, 2008 of their acceptance. A final
abstract will be due by Friday, January 9, 2009.
Information about the specific time and
location for the poster presentations will be included with conference
materials. Posters
must fit on a 4' by 4' poster board. Materials
should be legible from a viewing distance of 3'; presenters are
encouraged to provide handouts/flyers for those interested in learning
more about the project described in the poster.
SAMPLE ABSTRACT
New York State Congenital Malformations Registry
Development of a Web-based System for Case Reporting,
Data Management and Communication for the Birth Defects Registry
in New York State
Philip K. Cross, Ying Wang, Patricia M. Steen,
Charlotte M. Druschel, Jennifer L. Cukrovany, Zhen Tao, David R.
Marion
Background: The Congenital Malformations Registry (CMR)
of the New York State Department of Health (NYSDOH) is one of
the largest statewide, population-based birth defects registries
in the nation. Annually, the CMR receives reports on more than
10,000 children who are born or reside in New York State and
are diagnosed before the age of two years with a major congenital
anomaly. The objective of this project was to develop a web-based
system for case reporting, data management and communications
using the Internet and the NYSDOH’s Health Provider Network
(HPN). This system replaced a manual, paper reporting system.
It was designed to streamline registry operations, reduce the
reporting burden on hospitals and improve the quality and timeliness
of registry data by taking advantage of new technologies.
Methods: The Health Provider Network (HPN) has been
developed as a secure system for electronically collecting and
distributing health related data. NYSDOH uses techniques which
ensure that data exchanges between the HPN and providers are
done in a secure fashion and also provide security for data.
It is a HIPAA compliant system with a secure Internet site. The
security system consists of servers’ security protocols,
firewall facilities and authentication procedures ensuring that
only authorized users can access the data and services. The registry
is maintained as a relational database on a Unix server using
Sybase. The web applications were developed using software such
as JAVA, PERL, Dreamweaver and SAS/Internet.
Results: The
CMR has successfully converted 156 hospitals statewide from a
manual, paper reporting system to an electronic Internet system
using the NYSDOH’s Health Provider
Network. This web-based system allows hospitals two options: using
an online data entry screen or a file upload procedure to report
registry cases. Drop-down lists on the data entry screen along
with data validation functions help ensure that reports sent electronically
are complete and accurate. An interactive user menu system has
numerous applications that enable CMR staff to maintain the database,
process new case reports, review and code malformations and monitor
hospital reporting. Extended editing capabilities and a transaction
log were included for both CMR and hospital staff to check the
completeness and accuracy of case reports. The HPN allows CMR staff
and hospital users to communicate on-line via the web browser or
e-mail. This innovative system enables CMR staff to query hospitals
when a case report is incomplete or needs a more specific diagnosis.
Conclusions:
The CMR’s web-based
system for case reporting, data management and communication offers
a secure, cost-effective solution for participating hospitals to
report birth defect cases. Authorized users need only a PC and
a web browser such as Netscape or Microsoft Internet Explorer to
access the system. Electronic reporting reduces the amount of paper,
personnel and time necessary to comply with this mandatory process.
Though the verification of data quality is in the beginning stages,
electronic reporting should improve the accuracy, completeness
and timeliness of CMR data as well. This transition is ongoing.
CMR staff is currently working on new applications to improve and
expand the system.
Poster Topic Category: 1
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