Birth Defects Surveillance Guidelines
Click here for revised descriptions of birth defects and data elements
Guidelines for Conducting Birth Defects Surveillance
National Birth Defects Prevention Network
The technical guidelines in this document consist of a series of chapters covering the fundamental aspects of developing, planning, implementing, and conducting surveillance for birth defects and using the resulting data. They provide a way of improving the quality of birth defects surveillance data, which in turn enhances their use.
The Guidelines will be updated and revised over time. Whenever a revision is published, a revision date will appear in the chapter header to distinguish that page or pages from previous versions.
Comments and suggestions on this document are welcome. Submit comments to the Surveillance Guidelines and Standards Committee via e-mail at firstname.lastname@example.org.
Title, Reference and Acknowledgement
Table of Contents
Chapter 1 The Whys and Hows of Birth Defects Surveillance – Using Data
Chapter 2 Legislation
Chapter 3 Case Definition - Updated 3/2015
Chapter 4 Data Variables (also called Data Elements) - Updated 3/2015
Chapter 5 Classification and Coding
Chapter 6 Case Ascertainment Methods
Chapter 7 Data Quality Management
Chapter 8 Statistical Methods
Chapter 9 Data Management and Security
Chapter 10 Data Collaboration and Dissemination through the NBDPN
Chapter 11 Data Presentation
Chapter 12 Inclusion of Prenatal Diagnoses in Birth Defects Surveillance
Complete Manual (7MB)