Workshop: Spatial Analysis of Birth Defects Data

Presenter: Dante Verme (DC) and Russel Kirby (FL)

Welcoming Opening Session:
NBDPN
Russell Kirby (FL)
NBDPS
Marilyn Browne (NY)
March of Dimes
Cynthia Pellegrini (MOD)
CDC Welcome
Coleen Boyle (CDC)

Pulse Oximetry Screening of Newborns for Critical Congenital Heart Defects (CCHD): A New Opportunity for Public Health Programs (Synopsis)
Moderator: Richard Olney (CDC)

Newborn Screening for Critical Congenital Heart Defects: Alex Kemper (NC)
 

Point-of-Care Screening for Critical Congenital Heart Defects: A Federal Perspective
Coleen Boyle (CDC)
 

New Jersey’s Experience with Implementing and Monitoring Pulse Oximetry Screening
Leslie Beres (NJ)

Impact of Environmental Exposure on the Genome (Synopsis)
Moderator: Mary Jenkins (CDC)
 

Introduction to Gene-environment Studies
Mary Jenkins (CDC)
 

Epigenetic Changes Associated with CHD
Charlotte Hobbs(AR) 

Exome Sequencing
Mike Bamshad (WA)

Concurrent Breakout Session A
1) Electronic Health Records: Implications for Birth Defects Surveillance (Synopsis)
Moderator: Glenn Copeland (MI)
Seth Foldy (CDC), Tiffany Colarusso (CDC), Glenn Copeland (MI)
 

2) Communicating about Birth Defects through Social Media: Making it Work for You (Synopsis)
Moderator: Angie Colson (CDC)
Angela Colson (CDC), Conne Ward-Cameron (CDC)
 

3) Medications and Birth Defects
Data from the National Birth Defects Prevention Study (Synopsis)
Moderator: Gary Shaw (CA)
Kelly Getz (MA), Simerpal Gill (CDC), Marilyn Browne (NY), Paul Romitti (IA)

Concurrent Breakout Session B
1) Insights from Parents: Collaborations between Birth Defects Programs and Parents (Synopsis)
Moderator: Samara Viner-Brown (RI)
Samara Viner-Brown (RI), Kristin Fowles, Jodi Lemacks, Kayte Thomas, Kathryn Shea, and Amanda Mateus
 

2) Nuts & bolts: Evolving Databases for Birth Defects Systems (Synopsis)
Moderator:  Craig Mason (ME)
Lesie Beres (NJ), Sandy Fawbush (KY), Ann Phelps (TX)
 

3) Methods and Results of Environmental Analyses in the National Birth Defects Prevention Study (Synopsis)
Moderator: Peter Langlois (TX)
Peter Weyer (IA), Janice Panichello (UT),Tom Luben (NC), Mahsa Yazdy (MA)

Plenary Session: Chromosome Abnormalities (Synopsis)
Moderator: Angela Lin (MA)
 

Sonic Hedgehog, Decoder Rings, and Signaling Agents: How to Make an Embryo (Synopsis)
Thomas Sadler (UT)

Chromosomes and Microarrays: Deciphering the Results (Synopsis)
Angela Scheuerle (TX)
 

Syndrome Review I: Common Trisomies and Sex Chromosome Variations (Synopsis)
Cynthia Powell (NC)

Plenary Session continues: (Synopsis)
Syndromic Review II: Common Deletion/ Microdeletion Syndromes
Stuart Shapira (CDC)

Prenatal Diagnostic Testing: What the Abstractor Needs to Know (Synopsis)
Janet Cragan (CDC)

Prenatal ultrasonography in the diagnosis of fetal chromosome abnormalities (Synopsis)
Janice Byrne (UT)

Concurrent Breakout Session C (Synopsis)
1) Coding Chromosomal Abnormalities and
Chromosome Abnormality Syndromes Associated with Congenital Heart Defects Moderator: Angela Lin (MA)
Angela Scheuerle (TX), Angela Lin (MA)

2) The Hows and Whys of Health Services Research and Costs of Birth Defects (Synopsis)
Moderator: Cynthia Cassell (CDC)
Cora Peterson (CDC), Jean Tanner (FL), Robert Meyer (NC)

3) Media Training: What’s the Story Here (Synopsis)
Moderator: Conne Ward-Cameron (CDC)

Concurrent Breakout Session D
1) Enhancing collaborations between Birth Defects and Environmental Public Health Tracking Programs (Synopsis)
Moderator: Phil Cross (NY)
Speakers Heather Strosnider (GA), Phil Cross (NY), Russel Rickard (CO), Russell Kirby (FL)
 

2) Preconception Health Social Marketing (Synopsis)
Moderator: Elizabeth Mitchell (CDC)
Elizabeth Mitchell (CDC), Linda Squiers (DC)
 

3) A Mixed Bag of National Birth Defects Prevention Study (NBDPS) Highlights (Synopsis)
Moderator Margaret Honein (CDC)
Peter Langlois (TX), Charlotte Hobbs (AR), Sarah Tinker (CDC), Michele Herdt-Losavio (NY)

Concurrent Breakout Session E
1) Transition to ICD-10 and the Impact to Surveillance Systems (Synopsis)
Moderator: Barbara Warmerdam (CA)
Donna Picket (CDC), Janet Cragan (CDC), Cindy Chabolla (VA)

2) Multi-program Research Collaborations (Synopsis)
Moderator: Russell Kirby (FL)
Mark Canfield (TX), Jennita Reefhuis (CDC), Marcia Feldkamp (UT)

NBDPN President’s Award and Distinguished Service Award
Glenn Copeland (MI) and David Law (TN)